Guestbook

Javid's Guestbook

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Thank you to the many people who visited Javid's pages and signed this guestbook. If you're visiting and would like to leave a guestbook entry, we'd ask that you leave it on the WeePlanet guestbook page here.

Just wanted to take a moment to tell you that we are still thinking of you guys. We think of Javid often. You are both an inspiration. We love you!

Chan
Tue Aug 21 20:23:48 2007

Thank you for sending me to Javid's website. I loved learning about him and his all too short sojourn on this earth.

Ellen Feingold, MD
Tue Aug 7 10:04:18 2007

My wife Olga doesn't know you guys, but remembered Javid yesterday and asked me about you both. She sends her love and prayers.

Roberto Rodriguez Sr
Fri Jul 27 13:52:49 2007

We think of you guys all the time and we hope your hearts are healing. Thank you for touching our lives. Love always.

Pam, Gregg and Alex
Wed Jul 25 7:54:05 2007

Al & T - Thanks for sharing of your journey since the time our dear Javid took a different path. Be assured that you are not alone in your sadness. Having been with the other uncles aunts and grandparents on the Y side in recent days, I know that your family thinks often of you and I hope that our love and that of others in your extensive web of friends will help to offset some of the sadness you both feel. We trust that the slope will become gentler as the days and weeks go by.

Uncle Marion
Fri Jun 8 15:46:43 2007

"Javid thoughts" happen almost every day! Thank you for your last journal entry; you are so kind to share your feelings with us. In response, we wish that we could give you our arms for hugs that gently squeeze out the sadness, our shoulders on which to lay your heads, our hands to cup your tears and our ears to listen to your silence. This is one of the hardest times....Bless you both.

Bobbi
Tue Jun 5 19:35:27 2007

You write so vividly about this whole saga! You make it so real and so heartfelt! So rich and so painful! Thank you for sharing so intimately! Wishing you silence and serenity! I love you! T

TDB
Mon Jun 4 7:16:21 2007

I finally got to sit down and read Javid's memorial page and life story. I could not stop crying as I read the wonderful memorial service outline. My thoughts have been with you and the extended family over the last couple of weeks. I wish I was there to just sit with both of you in silence. My thoughts will be with both of you as you continue to deal with this beautiful, yet painful part of your journey. Love from South Africa.

Mike Botha
Sat Jun 2 17:38:47 2007

Tony-As I read your words of today, June 1, my heart was warmed as I thought again of the short life of baby Javid and the impact it has made on so many lives. I realize again that the best and most beautiful things in the world cannot be seen or touched but are felt in the heart. We love you.

Grace Freed
Fri Jun 1 20:25:47 2007

Was great to see both of you the other evening. Realized we never signed in. We continue to think of you during this time. We hope you feel strength in your hearts and minds to sustain you each new day.

Ed and Rhoda
Thu May 31 8:21:45 2007

Hey guys, Just thinking about you on the day after the sad anniversary yesterday. Hope you're both doing well. Abrazos y besos

glenna
Tue May 29 17:04:29 2007

What a beautiful family picture. Just wanted to pop in and say hello and tell you that we are still continually thinking of you guys! We love you! MCAA

Chan
Mon May 28 20:05:11 2007

Thinking of you guys today, one month from the day Javid left. Thanks for continuing to share about your experience since then.

Angie
Sun May 27 8:22:28 2007

Dear Ana Lisa and Tony: I felt it time to let you know how Javid Fynn is doing. Such a lover, he is! Full of spirit, kindness and blessed with a golden tongue! He wholly loves and misses you both but now understands the reason for his journey. He will try his best to wait patiently until he sees you again, but, in the meantime, his little ears are listening for your voices. He has become quite popular with the other Little Ones Who Have Left Earth Too Early. As you may guess, I have quite a brood of these special ones, so Javid has been surrounded by children from Africa, the Middle East, and his very own home town of Philadelphia. So many Little Ones coming back to me these days! But what a glorious galaxy of sight and sound they make! All in the same space, moving about at the same time but to totally different rhythms, speaking in dozens of dialects, shiny in their skins of honey, cedar, alabaster, ebony – and in complete harmony. You Earth folks have lost so much beauty! The Little Ones from Iraq are especially fond of Javid. He told them about his president shirt and was given high-5’s all around!! It seems that our Javid is also quite the entrepreneur! He has discovered that many of his new friends did not do well at choosing parents, so he has set up a service to help the up-and-comers look for the parent traits you both possess and to choose parents accordingly. Perhaps because his rhythmic, melodious name is very popular, he has used it to quite effectively on his new business card, sure to draw in many Little Ones (my clues added, in case you miss his subtlety): Javid F. L. Yoder “Find Your Next Nirvana” (Fynn, of course) With Love At Perfect Parents (the name of his service, Lapp). Finally, there is another trait that I have discovered, of which you are both aware. Javid is quite the tickler! LOVES to make others laugh and tickling usually does the trick. Of course, this is a wonderful trait but I have had to counsel him about his timing, which is sometimes a little “off.” This issue with timing leads me to give you a “heads-up.” Javid tells me that he misses tickling his parents. I have asked him to give you some more time and that – in awhile – you will be ready. I advised him that when you are ready to REALLY laugh again – from the tips of your toes, to the tops of your heads, from deep in your bellies and hearts, he may tickle you as much as he wants! So…sometime in the future, when you are in the midst of having that true, full-body laugh (yes, I promise that you will once again have perfect glee), you both will know that Javid is busy tickling your hearts. Love you to both from Javid and me.

Madramore
Wed May 23 18:57:00 2007

We are sorry that we couldn't be there in person for Javid's memorial. Thank you for posting it here. Know that you have been in our thoughts constantly through these months. We love you!

Vince & Michele
Wed May 23 6:10:01 2007

Ana Lisa and Tony - We recently learned of Javid’s passing and you have been very much in our thoughts. May you have peace in times of sadness…

Corinne and Jessica (from HFP)
Mon May 21 10:03:15 2007

You will continue to be in our thoughts and prayers. What a perfect demonstration of community--the warm hearts around you. That perfect little angel will continue to warm our hearts as we continue to "hold you and both your parents in the light." Thank you for letting us share in your "remembering" on May 12th. We love you, Titus and Ann

Uncle Titus and Aunt Ann
Sat May 19 14:17:57 2007

I have just learned of Javid and his brief life. I'm 69 years old, but Javid will have as great an impact on the Eternal Mystery as I or any other old codger. I celebrate his being and also the love of his parents and family.

Dan Hess
Fri May 18 8:58:01 2007

Ok... so I visited the guestbook thinking that I would have something funny and light to offer you... I am left only with tears in my eyes. There are blessings in all of this, as well as hurt. My thoughts have been with you always, and they will remain with you through the coming times.

Sarah
Thu May 17 21:09:31 2007

We could not be there at the memorial service but from what Mom told us, it was something we should not have missed! We thought of you that day and prayed for your strength. Our Church here in Puebla also took some time to pray for you during these last weeks. Sending our love, Erica and Joey

Erica and Joey
Thu May 17 2:02:27 2007

Tony & Ana Lisa: Still have Javid on my mind as well as both of you. Wish I could give you big hugs. If Heaven has bodies, Javid's is now perfect........he can breathe in the heavenly winds on his own! I wish you whatever time you need to heal!

Bobbi
Wed May 16 21:29:16 2007

How sweet it was to be with so many of the people who love you and loved Javid. You both are so wonderful.

Carrie and Natalie
Mon May 14 20:05:04 2007

Just wanted to say thank you for including us in such a special day on Saturday. The memorial was absolutely beautiful .. from the church to the stories and readings. I think it was said many times, but you have one heck of a support system that I know you appreciate. And I just want to repeat as well that Javid picked the best parents in the world. We love you!

Chan
Mon May 14 19:20:15 2007

Dear AnaLisa and Tony, What an experience you have had. Joys and triumphs to look back on will hopefully begin to replace more and more of the loss you must feel. Lisa, I have gotten received tidbits of information about you from time to time through our moms. I learned of your son from Andrea and Angie. My heart breaks for what you have lost, but says 'thank you' for the time you did have with your precious little boy. May God comfort you and Tony some way.

Debbie Lehman Rhodes
Mon May 14 13:21:31 2007

Dear, dear AnaLisa and Tony, I had hoped to attend your service (yesterday) for Javid and celebration of his short time here but was sadly unable to do so. I had all three of you in my thoughts and my heart all day. AnaLisa, I imagine that today was a complicated day for you and hope that the embrace of loving fellowship pulled you through. You will be hearing from me soon but I wanted to let you know that I have been holding you in my thoughts and heart. Carinos, Cathi (Tillman)

Cathi Tillman
Sun May 13 21:39:51 2007

It's Libby again... rereading my entry and noting the repeated words about LSH and my time there with you, Ana Lisa; this must mean something important and powerful.. Love again, Libby

Libby Pollak
Sun May 13 11:11:59 2007

Dear Ana Lisa and Tony, I hadn't been able to access your web-site until today, the day after the incredibly moving and beautiful memorial for Javid... I just spent time looking through the pictures and reading the words and feeling the energy of love and caring that it is evident in those visual images... but mostly I wanted to say that inspite of time passing and the missing of days hanging out with laughter and sadness at LSH at LSH.... and your babysitting for Molly, I have thought of you often and have been following the news of Javid since his birth and LSH e-mail forwards... and I have been thinking of you often and regret not letting you know this sooner. The wonder of your love is something I will remember always... Libby

Libby Pollak
Sun May 13 11:08:52 2007

Ana Lisa and Tony, I am so sorry I could not be there today for Javid's mamorial. I am sure it was beautiful and I thought of you many times throughout the day. Please keep us updated on how you are, and let us know if there is anything you need! Sara (Pensy nurse)

Sara Cohen
Sat May 12 20:50:56 2007

The twins are asleep, and I just looked at the clock, saw the time and thought "you are at the memorial service right now". Though I am not there in person, I am certainly with you in my heart and thoughts. I'm thankful Verton and Chantel are able to be there with you. Again I offer my sympathy for your loss of sweet Javid and hope the memorial service will do much for your healing. Sending my love on this special day.....

Aunt Cheryl Y.
Sat May 12 13:50:25 2007

I just found out about Javid's website a couple of days ago and I have been sharing it with all of my family and friends to spread what a wonderful little man Javid was and what wonderful parents you are. My heart goes out to you.

Jessica (CHOP PA)
Sat May 12 10:26:18 2007

We are very sad with you at the loss of your tiny angel. Some people come into our lives and we are never the same. We pray God will put very loving arms around you, Tony and AnnaLisa. Your community mourns with you. Bless you, Hubert and Mary

Mary Rittenhouse-Schwartzentruber
Fri May 11 20:22:03 2007

Our hearts break with yours and we are sending love and prayers to you now and always.

Jann and Caite White
Fri May 11 17:48:06 2007

Dearest Tony and Ana Lisa, I have thought of you all very often over the past months and have asked Valerie always how Javid was getting on. And then she and Aaron told me that he would not survive. I am so sorry for your loss. It is unimaginable what you must be feeling. I just wanted you to know that I think about you and send you all my love. Shabnum

Shabnum
Fri May 11 10:50:53 2007

There are few words that I can come up with because I cannot imagine such a loss. You are two very strong people who have clearly touched so many people in your personal and professional lives and you were exceptional parents.

Silvana
Thu May 10 18:30:54 2007

Ana Lisa and Tony, You and Javid have been on my mind and in my heart for some time, and will continue to be. Thank you for sharing your incredible journey. I wish you peace. With love and respect, Mira

Mira Gohel
Thu May 10 12:55:37 2007

We could stare at this blank comment field for hours and not find the right words. Our thoughts and prayers are with you, and we wish we could be with you on Saturday. With love,

Adam Weaver and Molly McGlone
Wed May 9 16:30:36 2007

Dear AnaLisa and Tony, I just heard about Javid, from his birth to his recent passing. I am so sorry for your loss. He truly was a fighter and a blessing. While his time here was too short, he was blessed to have such wonderful parents with such strength and love. My thoughts and prayers are with you. My condolences. Love, Tina

Tina Jiwatram
Wed May 9 0:19:28 2007

We are grateful to have received your email with this link after Javid's death. Reading the site has been a way to connect with his life and yours, through pain and joy. Jim has been hearing about Javid's struggles every Tues am and the mens' bible study here in the burg and Ann hears from Jennifer Bauman. We are so sorry for your loss. It seems doubly tragic that you Tony who gave our 3 children so much joy (Toe- knee- lap) have been denied that with your own. We mourn with you. Love, Jim and Ann, Sara, Rachel, Nathan

Jim and Ann Graber Hershberger
Tue May 8 17:08:56 2007

I am so, so sorry to hear of your loss. God Bless Javid for having graced this world with his presence. I hope you can find comfort and support in all the love surrounding you. Love, Irene

Irene M Dougherty
Tue May 8 14:41:23 2007

May God continue to Bless You, and Keep you in His Peace.

Lila and Cleveland Brunson
Tue May 8 9:56:08 2007

We've just spent the evening reading the website (and weeping). Our hearts are heavy for you and our prayers are many. Much, much love...

Derwood & Cindy
Mon May 7 23:57:02 2007

Dear Friends, we want to thank you so much for your kind words over the last 13 days. You have no idea how comforting it continues to be for us to check the website several times each day (and yes sometimes more) to remind ourselves that we have a wonderful community of people who weep with us and share the burden of losing of our dear Javid. We haven't been able to write an update lately but plan to do that soon. You continue to give us strength. Thank you so very much for that.

Ana Lisa
Mon May 7 19:33:29 2007

The photos of Javid show what a gift to the world he is. I wish you the best and all of eternity to heal.

Amanda Innes
Mon May 7 13:13:13 2007

AnaLisa and Tony: I pray to Goddess Abeona to protect Javid on his journey away from here to there, and to the Goddess Cunina, who is the protectress of infants, to the Godess Artemis to give you strength/replenish your strength, and finally, to Goddess Venus to bring you great love.

Roberta L Hacker
Mon May 7 12:17:14 2007

I am one of the midwives who took care of Ana Lisa during her pregnancy (and was on call the day she was admitted). I admire her and David for their courage and strength despite having an unplanned complication and now having to cope with the loss of their son. Our thoughts and prayers are with you.

Diane Zimmerman
Mon May 7 10:34:42 2007

Javid was a fighter, and your love and dedication to him a source of inspiration to all of us around you. Thank you for sharing that. We share your sorrow, and wish you strength and peace.

Andrea Kirsh and Andrew Morrogh
Mon May 7 7:28:06 2007

I am David's friend from law school, and he shared Javid's site with me. I cannot imagine the pain you are feeling, but I hope through Javid's life you find the strength to heal. Your family is a very brave one. Your love for each other and for Javid will carry you through this dark time and will help you to remember the lighter times of when your little boy was on this earth. Your site is a beautiful, glorious tribute to your son. His life is a blessing in itself, and he is blessed to have had parents so caring and devoted. Though we've never met, I just wanted to let you know how many lives your son has touched and from how far prayers for all of you are coming.

Helen
Sun May 6 23:14:18 2007

Tony and Ana Lisa, I just wanted to let you know that I have been thinking about you all week and hoping you are feeling lots of support. I grieve with you in the pain you are experiencing, but it is good to read that you are finding yourselves being able to laugh and have some fun even through the pain. May God be with you.

ceci
Sun May 6 12:32:58 2007

Dear AnaLisa and Tony, I would like to express to you and yours my deepest heart felt condolences. Your family's journey has been most inspiring, full of so much love and hope, that though these days seem cloudy and cold, I know that tomorrow can bring sunny days.Javid will be embraced in our hearts forever. God Bless you, Madi

Madi
Fri May 4 17:31:52 2007

Ana Lisa and Tony, I don't have any words cause I can't even imagine what you are feeling. Just know that I care, that you are in my prayers, and that I'm a good listener. Irene

Irene L. Brantley
Fri May 4 11:01:33 2007

Emotions are full, words are difficult. Sending my love to the two of you, to all the family who lovingly hold the memory of Javid, Wee One, who came to bless you and all of us. Thank you, Tony, for your writings that pulled us in to the close circle in a miraculous way.

Grace Marie Gerber
Fri May 4 7:19:21 2007

Ana Lisa and Tony, I visited Javid's site today again. What a beautiful, incredible blessing your love for each other produced. Nothing can ever take that away and you will always be Javid's parents. As you move through these next days, weeks, months, know that God has given you both the capacity to love unconditionally and endlessly and what ever comes you can bear it together. When the dust clears and you you are left with silence you still have love. Your beautiful spirits filled his short time on this earth with a lifetime of love that he felt and we all feel in both of your presence. You sent Javid back to God with hugs and kisses and the knowledge that you both did an extraordinary job as his mom and dad. Javid is at rest now and I pray for both of you to find peace. My heart is with you both, Charlette

Charlette M. Harrison
Thu May 3 15:20:47 2007

Hi Tony and Ana Lisa - I teach w/ Bev at Goshen College. I have been following Javid's updates on your blog, celebrating the good times and praying through the bad ones. I am so sorry that your Wee Boy has left you, and that your sorrow must now be enlarged to accept this reality. Please know that we have celebrated your love for your son and your strength in the face of tough choices, and the mighty spirit of Javid Fynn, who is now cavorting w/ the angels and breathing lungs full of good heavenly air. Blessings.

Deb Brubaker
Thu May 3 7:16:10 2007

Tony and Ana Lisa, it has been a long time since we met but I have been following Javid’s progress since birth via periodic updates from Pam Gessert. I have been excited about the good news and concerned about the bad, but now I am devastated to learn that your sweet angel has died. You faced an immensely difficult period with strength, dedication and a wonderful sense of humor, so it is no surprise that your sweet baby had the strength of spirit to keep fighting for as long as he did. I am so sorry that his little body could not keep pace with his spirit. Please know that the three of you are in my thoughts.

Jill Johnson
Wed May 2 16:42:58 2007

Tony and Ana Lisa, I am so very saddened and sorry to hear of the loss of your son Javid. Please know that you are in my thoughts and prayers. You have my deepest sympathies. These words cannot express my sorrow. Please take care.

Mary Grace Bontempo
Wed May 2 14:56:43 2007

I'm so sorry for your loss. I'm sure you feel the support and love of your families, and just know that you are in my thoughts. I know that there are many of our relatives in heaven, and they are all up there, passing Javid around like the proverbial communal baby.

Charlena
Wed May 2 14:54:05 2007

Tony and Ana Lisa, Thanks so much for continuing to share the story of love and strength the 3 of you (along with many others) shared. I was so saddened to hear the news that Javid died. I am so sorry and pray that you continue to be surrounded by the love and care that has been part of your journey these past months.

Lorraine Stutzman Amstutz
Tue May 1 19:43:08 2007

To all the wonderful human beings who happen to also be wonderful nurses at Pennsy and Chop, You’re amazing! It was an honor to enter your world and watch you work, a comfort to know your healing hands and voices and good humor were with Javid at all hours of his days, and a gift to feel you care for and love Javid and also Ana Lisa and Tony, and even some of the rest of us who lingered timidly on the sidelines. Your words, with the rest of this chorus, continue to be healing. So insufficient, but thank you again.

Uncle David
Tue May 1 17:11:39 2007

Tony and Ana Lisa, My heart is filled with sorrow to hear your sad news. You and Javid are in my thoughts. I send you all my warmest thoughts of love and healing. I never had the privelege of meeting Javid, but I know that he was blessed to have two loving parents like you. I can see that he also blessed your life. Much love to you and your family.

Peggy Brannan
Tue May 1 15:46:30 2007

GUYS I CAN'T STOP THINKING OF YOU. I HOPE YOUR AREN'T FEELING LONELY BECAUSE WE ALL LOVE YOU AND WE ARE HERE TO SUPPORT YOU THROUGH THIS. LOVE

Suzette
Tue May 1 10:27:17 2007

I can't put into words what I feel at this oh-so sad moment, Tony and Ana Lisa, but I know that the Lord above couldn't have given Javid so great a set of parents. The little angel is smiling upon you both and I can almost see him grabbing your hands into his little ones in a gesture of thanks. May God bless baby Javid now and forevermore, and may His blessings and comfort be upon you both.

Roberto Rodriguez Sr
Mon Apr 30 22:15:37 2007

I...can only imagine; what I've seen; you have lived...such sweetness, back in the arms of God. May your arms be filled with each other and all of our love, thoughts and prayers. Sleep with peace...

Denise Clemens Murphy
Mon Apr 30 21:45:49 2007

I haven't been able to put many words together. But I agree with Maureen from CHOP. I have never seen such strong, loving parents. You are the reason Javid thrived for so long. He got his strength from you. It is so funny because at work last night, Nicole and myself, after reading your update, said to each other that you are in the wrong profession. You should be a writer. Your words are touching. I feel them on every part of my being. You have a way of saying things and making them so real and clear cut. Thank you for sharing your thoughts and feelings with all of us. I will miss Javid. He will always hold a very special place in my heart.

Nurse Patti
Mon Apr 30 18:24:37 2007

maureen put it so perfectly. with your hearts heavy with 6 1/2 months of severe ups and downs, you ultimately looked beyond what you desperately wanted and were able to do what he needed. you did everything so right despite how things may feel or seem. i admire you and love you with all the pieces of my heart. Javid, my little lovebug, i've spent countless hours thinking of you, worrying about you, despising my days off, wanting to go to work so i could see you again and sing to you and take care of you. my heart is full of you and i can't wait to see you again and hold you and hug you. thanks for stealing my heart. i love you my little stinky:)

nurse jilly jill
Mon Apr 30 17:55:48 2007

I can't stop thinking about you and your beautiful little Javid. It was heartbreaking to see you both in such grief. It just doesn't seem fair that such devoted parents would have to suffer with this, the ultimate loss of your baby. He tried, and you tried, and we tried, but he maybe was just born too soon. Friday night after leaving the NICU I went home to read over every inch of your online updates. Saturday there was a numbing silence in the room, as word spread nurse to nurse and so many of us felt drawn to his website (whose icon is on the computer next to his bed). Though we only had him for a short time, what was most clear was that Javid had a difficult time on this earth, and every second of every day you both loved him through it, as did a host of medical staff from Pennsy and CHOP, and so many of your friends and family. When things looked really bad, you made the selfless decision to let your baby go- to return to God, free of the pain and suffering this life can bring. I admire you for your agonizing painful and unselfish decision, born out of that perfect love only a parent can know. When life settles down, many moons from now, I hope you will publish Javid's story. Be good to yourselves. Love, Maureen

Maureen (CHOP)
Mon Apr 30 16:06:04 2007

All of us at Community Home Services in Souderton PA share in your sorrow as fully as we shared in Javid's life through updates from Grandma Lapp. How we prayed and believed with you that such a beloved babe would certainly be made whole. And now beyond our comprehension dear Javid is now whole and beloved beyond measure by his creator. We have so admired your strength and are so sorry for your loss. Peace be with you and your families.

Diane Tihansky
Mon Apr 30 15:46:12 2007

Tony and Analisa, I am so sorry to hear about Javid's passing. Although I only knew your family for a short while, your words, your thoughts, your presence and your beautiful Javid had a huge impact on me. Know that your beautiful baby touched so many people in so many different ways. If you ever need anything, please do not hesitate to call me. You are in my thoughts and prayers....

Debbie Saunders
Mon Apr 30 14:49:01 2007

Tony and Analisa, I am so very sorry to hear about your loss. Please know that you and your family continue to be in my prayers especially during this most difficult time. Cuidate.

Joanna Otero-Cruz
Mon Apr 30 12:22:14 2007

Tony & Ana Lisa I'm so sorry for your loss. It's clear that Javid captured the hearts of everyone who knew him, including the ones (like me) who knew him only through your blog. I hope it is some measure of comfort to know that he was precious to so many, and that he was loved and loved well. I believe it was the love shown by many, but especially by you, which gave him strength to keep fighting for so long. "Love never fails," and I believe this is true even when circumstances feel otherwise. There is more to Javid's life than we can know. I pray that this same Love will cradle you in your grief and give you strength and comfort.

Monica
Mon Apr 30 11:16:10 2007

Thanks once again for stirring so many of us with your poignant reflections. Here at Plains Mennonite we add our voices to the great chorus indeed of those offering support and much love during this part of your walk through our “Cruel Crazy Beautiful World.” Shalom.

Mike Derstine
Mon Apr 30 11:05:22 2007

Tony and Ana Lisa, You are both amazing strong beautiful spiritual warriors. Over the months I have followed your website religiously, having known and loved you in "real life"- and I want to thank you for giving me so much to read, beautiful pictures of all of you to look at- this has made me feel that I can help somehow, by sending love and energy to the three of you, and I was able to meet your little angel as a virtual friend. Your positivity and love continue to inspire me. I cannot even try to know what you are feeling and no one can take away your loss, but as others have said, there is no denying the love that Javid was surrounded by in his time here. May you be protected and surrounded with healing light as you move forward on this journey. Please let me know if there is anything I can do. Con respeto y admiración, siempre.

Jen Cronley
Mon Apr 30 10:50:24 2007

My heart cries in sadness over your loss. No words are available. I do believe like it says in Psalm 26 God is our refuge and strength, a tested help in times of trouble. God can handle any anger and tears. Go for it.

Loretta
Mon Apr 30 10:46:10 2007

Tony and Ana Lisa, I just cannot imagine going through what you have been through, not only in the last 6 months, but especially in the last week. No parents and no child should have to experience what you have experienced. How I have wept. I am so sorry, so very sorry. And yet, Javid is safe in the arms of Jesus, and at peace. No more struggling to breathe, no more pain. Thank you, thank you for drawing us all into your lives, however difficult it must have been at times. He was a very much loved little boy. I hope to see you at the memorial service. Our prayers are with you.

Javid's Great Aunt Mary
Mon Apr 30 8:07:35 2007

Like others, we can't think of the right words to offer. We can only imagine your pain and hope and pray for healing. We are certain that Javid knew, in his baby way, that his parents loved him deeply, which is the best gift any parent can give a child. We're holding you close in our hearts.

Jessica Lapp and Phil Hertzler
Mon Apr 30 8:00:24 2007

Sending our love

Dick and Mary
Mon Apr 30 7:23:51 2007

Tony and Ana Lisa, you are held tightly in love by all of us in your deep grieving and re-membering. Precious, precious Javid, the Chorus will sing on for you, for your parents, for your grandparents...

Marion and Ellie
Mon Apr 30 6:49:54 2007

Dear Ana Lisa and Tony Please know that my thoughts have been with you and continue to be with you and your family during this extraordinarily difficult time. Salaam Andrea Baibeche

Andrea Garrison Baibeche
Mon Apr 30 6:40:53 2007

Dear Ana Lisa, Our lives have not crossed paths in nearly twenty years, yet your story reached me through the years and the miles. My family learned of dear Javid several months ago and have followed his story at almost an addicted level, checking your site nearly everyday for updates. My how we cheered his highs and prayed extra during his lows. What a true blessing wee boy was to so many and continues to be through your memories. As I read your words last night Tony, it struck me that we can never do enough or know enough during times such as this. When we come upon a mountain so big and so tall all we can do is rest in His Heavely arms and allow Him to carry us across. So many times in my own life, I have prayed a simple prayer. Lord, let Your will be my will. This is my prayer for you and your family in the days ahead. God Bless, Angie Boyers Whitehead

angela boyers whitehead
Mon Apr 30 6:23:55 2007

You are enveloped in love by all of us and by a Love that will not let you go in your deep and intense grieving. Precious, precious Javid...the Chorus sings for you and for your parents.

Marion and Ellie
Mon Apr 30 6:13:59 2007

Im so sorry to hear of the news and want you to know that i talked to Brad today and we are keeping you guys in our thoughts and prayers. When i talked to Helen yesterday, i could sense the sadness and want you (Tony and Analisa) to know we care. If there is anything that we can do to help please let us know. Love Brian ( your cousin)

Brian Longenecker
Sun Apr 29 22:55:21 2007

Thank you for sharing the life of Javid with us, we feel the pain you are feeling and want you to know we are thinking of you in this hard, hard time. We are so sorry for your loss, may you be surrounded with love and care as the days and weeks go by.

John Lichty, Emily, Jacob, and Carlos
Sun Apr 29 21:52:28 2007

Our hearts are aching...Michelle prayed "God, it is so sad that Javid died. Help his family not to be so sad". May God carry you and comfort you when it's hard to put one foot in front of the other.

Emily, Kenton, Libby, Michelle
Sun Apr 29 19:31:36 2007

Communal baby indeed. Thank you for sharing him with us. So many are sad with you now--poor balm though that may be. You were and are and always will be caring, believing, committed, convincing, eloquent (so eloquent!), and whatever enough. Daddy and Mommy enough. My mom said, "If ever a family could will a baby to live, it would be that one." But, as we've always known in our heads, and now know in our hearts, life isn't fair. We're so so sorry. I hope time does help, and the love all around you.

Cheryl Peachey Stoner
Sun Apr 29 18:59:20 2007

Tony & Ana Lisa, We are so sorry for the heart ache of this time. Your words are incredibly moving. You are in our hearts and in our thoughts.

Janet & Steve Panning
Sun Apr 29 16:56:17 2007

We're so sorry for your loss Tony & AnaLisa. Little Javid touched all of us through your openness and pictures. We are thinking of you and send our love.

Vince & Michele
Sun Apr 29 16:16:41 2007

We are sitting here reading and crying and trying to answer the kids' questions of why Javid? Why?" and we can't answer them ...we can only cry with you...and tell you that you are the most loving parents and that you did care more than enough...and we all did...and it's just not fair and we are just so sorry and just want you to know. I can't be eloquent right now and don't know how you keep managing to be...but thank you for letting us all share the life of Javid Fynn who packed a long lifetime of love and strength into his six months on this planet. Please know we are weeping alongside you...

Lisa Nick Caelan Malcolm Izzy M-B
Sun Apr 29 16:03:22 2007

What amazing words you have at a time when life is so hard for you both. I hope time really does heal some of this for you. I know that you are strong and know that Javid will watch over you.

Sara Cohen (pensy nurse)
Sun Apr 29 15:08:28 2007

Tony, I have just read your words and as always am moved, I want you to know something though. Aruna and I used to sit by Logan's bed side every day, and as we would talk to our son, we would always peer over to Ana lisa and yourself and see the strength and the vibrant smiles that lit up Javid's room. We shared many of the same nurses and doctors as you, and I would agree that they were truly magnificant people, but I also know that your son fought for life harder then anyone I have ever known, because of the love his parents gave him, becasue of the devotion you showed and becasue of the strength you passed onto him. Javid was very lucky to have the two of you, and from the bottom of my heart, I wish you nothing but health and happiness, please let me know if there is anything at all we can do to help. matthewmalc@aol.com

Matt Malc
Sun Apr 29 14:40:54 2007

We are so very, very sorry! What an honor it has been to be on the side line of Javid's precious little life and to hear his story unfold as you have relayed it to us. What an amazing, beautiful baby boy! We hold your family up in prayer during this awful time.

Tim and Kim
Sun Apr 29 14:25:44 2007

guys— trying to do other things today, but keep coming back to Javid and what you guys have been through. Anyway, we’re thinking of you guys, and maybe the sun is actually shining there today unlike here. I hope so. Sneeven

Sneeven
Sun Apr 29 12:01:22 2007

We share "A Blessing in Bereavement" by Marjorie Dobson which brought deep comfort to us when our daughter and a former classmate of Tony's, Lindsay Parker, died in 2004: "May God bless you and be with you in this time of deep sorrow. In the tears of others, know that God weeps with you. In the touch of others, know that God's arms are holding you. In the practical work of others, know that God is helping you to cope from day to day. In the words of others, know that God is speaking to you. In the prayers of others, know that God hears you. And in the desolation of this time, know that by each tear, touch, act, word, and prayer, others are bringing God's love to you to filter into those empty spaces with God's compassion and understanding." With our deepest sympathy and loving appreciation of you for your total investment of yourselves in this precious baby boy, Marcia and John Parker

Marcia and John Parker
Sat Apr 28 21:45:22 2007

The Congregation of the Germonds Presbyterian Church in NY hold you close in our hearts and continue to pray for your family and the medical staff who attended to Javid. God bless you all and the young life who touched the hearts of so many people.

Barbara
Sat Apr 28 21:09:44 2007

There are no words that will make you feel better during this time, and I am not about to try. Just know that we love you and will continue to think of you and send all the peace and energy we can.

Chan
Sat Apr 28 20:30:21 2007

No, no, no, no, no! That's what my mind and heart are saying right now. I can't imagine what your minds and hearts are saying. I wanted him to live . . . I thought he would. I'm having a really hard time imagining that he's really gone, really not going to peer out at us from another photo with another hot little outfit, the studmuffin that he was. I'm holding you in my mind and heart as best I know how.

Angie
Sat Apr 28 20:27:21 2007

Sam & Helen, Tony and Ana Lisa, I was saddened and grieved to hear about Wee Javid, the little boy who has left a huge hole in your hearts and lives. His life isn't over, he has simply moved to another home where he is alive and well, and where he will live forever, and he has taken a part of you and your love with him! I'm sure life will never be quite the same again. He will never be forgotten, but deeply missed. Yesterday, before I knew, I was thinking about the song, "Jesus Shall Reign Wher-e'er the Sun",and I thought of Javid. verse three: "People and realms of every tongue dwell on his love with sweetest song, and INFANT voices shall proclaim their early blessings on his name." [Hymnal Worship book, pg. 319] Blessings and Love, Aunt Miriam L

Miriam Longenecker
Sat Apr 28 19:44:12 2007

Ana Lisa and Tony, We are so saddened by the loss of Javid. We have you in our thoughts and hope you feel the support and love of your family and friends surrounding you during this difficult time. The students in my class will be sad to hear the news as well. They have been asking for updates regularly about Javid. We love you both. The Archers

Maria, Joe, Olivia, Natalie, Gabby
Sat Apr 28 16:13:13 2007

Ana Lisa and Tony, Truly, grace can be felt in the moments. The loving devotion that you gave the wee boy touched all of us. He and you are blessings to our world. Javid's spirit was sent soaring home to God, carried by the many prayers of deep love and tenderness in gratitude for the gifts he gave us during his brief journey. Sandy and Suzanne

Sandy and Suzanne
Sat Apr 28 15:09:18 2007

Dear Tony and Ana Lisa, I am just so heartbroken to hear the news. Javid was a wonderful little man, and I was happy to have been able to be a part of his life. I pray for peace and strength for you and your family.

Karyn Caravouilas (Pennsy PA)
Sat Apr 28 13:58:33 2007

Dear Tony and AnaLisa: Our tears flow for you through this difficult time; words cannot adequately express our love and support for you. May you find peace amidst the sadness and exhaustion.

Ruth and Ron
Sat Apr 28 12:52:21 2007

Your little boy is free of all those nasty tubes and maybe singing or cooing one of those baby lullabies. He is in a safe place. I think we have all been drawn closer together as your other family. Love you, Miss Grace

Grace & Harvey
Sat Apr 28 12:11:00 2007

Tony and Ana Lisa, we’re so terribly sorry. We are heartbroken for you. Thank you for being so selfless in sharing Javid’s life with us, even at the most painful times–-you have been truly inspiring through everything and we hope in some way to return some of the strength that you have shown all of us. You are very much in our thoughts.

Dana & Chuck
Sat Apr 28 11:58:49 2007

Words are inadequate to how we feel and how you two must be feeling. Just know that we are grieving with you. We cannot imagine how it must feel and we are so very sad. Take time to grieve, than time to care for yourselves. You two have shared in a journey many of us never hear or experience. Thank you for the glimpse into your lives and for sharing Javid with us. He was a truely handsome niblet! Erica and Joey

Erica and Joey
Sat Apr 28 11:44:46 2007

I am so sorry to hear -- I am at a loss for words. It was an honor to have met Javid and the two of you. I am thinking of you all --

Michelle Sohlich-Miller (nurse from Pennsy)
Sat Apr 28 11:39:58 2007

Oh Tony and Ana Lisa. I am Soo sorry! Because of the way you all have kept us updated, I feel so much closer to you and to Javid and this really makes me sad. I'm glad to see that lots of people have been showing you that they care. I'm praying for you all, including your parents and brothers and sisters.May you feel God's love strongly during this time.

Ceci
Sat Apr 28 11:33:20 2007

Yesterday as we absorbed the news of Javid's passing, we sat on the couch and cried together. Then Naomi went over to the coffee table to pick up a tulip from a vase of buds that our friend Melissa had given us earlier in the day. She suggested we each in turn say a prayer for Javid while holding the tulip, which we did. I wish I could remember the exact words of the prayers from Greta and Naomi -- much more eloquent than their parents! We hope you are able to get much needed rest this weekend. We love you dearly.

Bev, Dale, Greta, Naomi
Sat Apr 28 11:20:47 2007

Dear AL and Tony, i don't even know were to start my heart is hurting for you guys but i just wanted to let you know that i am proud of you two, you have demonstrated the entire world how strong you guys are even though these days you problably thought you weren't. You were strong since the beginning, you have shown how courageous you two are. You knew what it was best for him and that should make you feel proud. Javid was lucky to have two such loving and caring parents like you guys. I wish i could ease the pain. Please remember that we all love you and we are here for you.

Suzette
Sat Apr 28 10:38:28 2007

Tony and Ana Lisa, We are heartbroken and so very very sad about Javid's passing. He was a beautiful little boy and our lives will be forever touched by him. Thank you for sharing so much of yourselves and bringing us all closer to him. We love you very much and will help you get through the times ahead.

Pam, Gregg and Alex
Sat Apr 28 9:26:01 2007

Ana Lisa and Tony, I'm am so very sorry for your loss. Javid is truely a beautiful little angel who touched so many of us during his short time here on earth. I am holding you close in my thoughts and prayers.

Tonya
Sat Apr 28 9:14:49 2007

Tony amd Analisa, May all the strength that you saw in Javid be yours in these hard days. Love to you in this very sad and hard time. We are all crying with you.

Cindy Lapp
Sat Apr 28 8:39:49 2007

We are so very sorry for your loss of sweet baby Javid. He was very special and we ache for all of you. You are in our thoughts and prayers as you go through this time of sorrow. We love you!

Cheryl & Verton
Sat Apr 28 8:22:54 2007

Dear Tony and Ana Lisa Yours is a story of deep love and courage and wisdom. Thanks so much for letting us in so close -- it makes us all take stock. All of our hearts break along with yours. And, your boy is free -- I imagine his little boat on the wide blue ocean slipping effortlessly and easily through the water -- with all of your love in him. He is free and we all have him in our hearts. I am so glad that you have each other and so so sad for your loss. Sending a big big hug.

Martha Dave Ella and Cooper
Sat Apr 28 8:21:38 2007

I'm so sorry that Javid is gone... this is all so hard to fathom. You have been so strong and courageous, and your website has been filled with such humor and beauty over the past 6 months. Thank you for sharing your story in that way. If there is anything you need that I can do, please let me know.

Tami Gerber
Sat Apr 28 6:58:00 2007

Tony and Ana Lisa, I have been following your journey with Javid through Bev, Dale, Greta and Naomi. Your honesty, humor and love for each other and Javid have been an inspiration to me and others. I am so sorry for your loss.

Melissa (Shirk) Jantz
Sat Apr 28 6:53:16 2007

I am so sorry about Javid's death. You have both been such loving parents to him, always making his comfort and well-being your priorities. I'm keeping you all in my thoughts.

Carrie
Sat Apr 28 6:52:14 2007

My heart again aches for you both as you grieve the loss of Javid's incredibly special life. We love you much.

Kris, Pete, Emma, Andrew
Sat Apr 28 6:33:13 2007

Tony and Ana Lisa, your sweet boy touched many lives. Through your web site and stories heard through friends, he touched mine as well. I am so very sorry, and along with the many others who have been following your journey, I send my love and prayers for comfort.

Analisa (Massanari) Ficklin
Sat Apr 28 2:13:16 2007

Oh Tony and Ana Lisa, I am so sorry for your loss. I know you loved Javid so much, a part of you has died with him. You have shown him so much love and care during his short life, at least without a doubt he knew how much he was loved. Thank you so much also for all of the time you have put into keeping us updated. I will continue to pray for you as you begin this new path.

LaRee
Sat Apr 28 0:16:58 2007

I am so very sorry for your loss, i am just so sorry.

Matt Malc
Fri Apr 27 23:17:58 2007

Sweet Javid, Tony and Ana Lisa- we love you. We’ve been thinking of you guys all day, and are so grateful to have seen Javid yesterday, and to have gotten to know him during these past 6 months. Thank you for sharing your journey with us. Your love, spirit and comfort of Javid will continue to hold him tight. Take good care of yourselves and know that we all have you in our hearts. We’re so sorry.

Margaret & Brian
Fri Apr 27 23:13:12 2007

We can't say it any better than Maggie, "Javid's dead, but we still love Javid." Thanks for sharing so much of yourselves with all of us.

Dave and Amy
Fri Apr 27 22:47:26 2007

I was so sorry to hear the news today. Javid was always in transition, and today is another transition. We can't say this is the last transition, because in your hearts he will always be there, exchanging looks of love with his wonderful parents. May God bless you and keep those memories close.

J.F. Lapp
Fri Apr 27 22:30:11 2007

I am so sorry for your loss. I will be eternally greatful for the time I had to share with your beatiful son. You are all in my prayers, my thoughts and my heart.

Katie (Pennsy)
Fri Apr 27 22:28:55 2007

I can only imagine what a heartwrenching week you have been through. You continue in our prayers. Hugs and hugs and more hugs all the way from Hesston!

Louisa Oyer
Fri Apr 27 22:11:23 2007

Javid - In the arms of an angel. Always was,here; always will be,there. Tony and Anna Lisa - I'll remember and treasure this evening. Thanks for coming.

Pauline
Fri Apr 27 22:04:08 2007

Javid is loved by so many. He was a true fighter. I will miss him terribly.

Nurse Patti
Fri Apr 27 22:00:39 2007

Javid experienced such love for his brief time with you. God bless you and hold you.

Jennifer Lapp Lerch
Fri Apr 27 21:59:57 2007

We love you Tony, Ana Lisa, and dear Javid

Eric and Rebecca
Fri Apr 27 21:40:10 2007

I know Chantel and I read your site everyday. I am so sorry about your loss. May God be with you and help you through this. God Bless Wanda Boyce

wanda boyce
Fri Apr 27 21:28:44 2007

I am so sorry about the passing of Javid. He was such a sweet boy and will live in our memories forever. Take time for yourselves, breath, sleep, eat, heal as best you can. Be well. Sara Cohen (pensy nurse)

Sara Cohen
Fri Apr 27 21:20:49 2007

We hold you guys close-close. For whatever comes. Across the miles we're huddling into the darkening shadows with you. Maybe we can at least chase away some of the chill. Love, Uncle Ron

Ron Diener
Fri Apr 27 19:02:49 2007

Tony and Ana Lisa, Paul and Ann, Sam and Helen, and the rest of Javid's loving family -- We at Park View Mennonite Church are holding you all in our prayers. May God's comfort be yours today and always, and may your tears be water for soil that in due time, will bring forth new life and hope.

Phil Kniss
Fri Apr 27 17:39:42 2007

We were supposed to be focusing on a training today but we just wanted you both to know you've been in our hearts all day today. We've been sitting here trying to find words that will be supportive, or helpful, and let you know how deeply sad we are for you right now. We support you both right now and for the long haul.

Patti and Susanna
Fri Apr 27 16:00:59 2007

I've been rooting for the little guy for many months. It didn't hit me until now just how loved he is.

Neil
Fri Apr 27 14:43:08 2007

Hi Tony and Ana Lisa -- I'm coming into this site and your journey a little late, but wow. Please know that I'm holding all three of you in my heart and will be remembering you...especially today, in what seems to be another particularly scary time. Much love to you.

Amy Houser
Fri Apr 27 13:37:27 2007

I think of the three of you so often and run to check the website for a Javid and parents update. Some days I sit here at the computer with a giant grin on my face as I read your entries and especially when I look at Javid's pictures! Other days, like today, tears stream down my face as you share his determination and his struggle. I wish I could offer more than love and prayers...but it's all I have...love and prayers for each of you--an incredible family of three.

Sandra Shenk Lapp
Fri Apr 27 11:43:12 2007

Tony & Ana Lisa, Donno and I hold you in our hearts and we wish you and Javid were on a different journey. We keep the three of you in our thoughts and prayers.

The Laaytons
Fri Apr 27 10:13:27 2007

Javid, Dad and Mom; All three of you are in my prayers. What brave people you are. You may not be strong for this but wrapped in Gods arms he will help you walk through this. I don't believe any of us would be strong through this time. I lift you in prayer

Loretta
Fri Apr 27 10:09:03 2007

May you know yourselves to be embraced by the love and prayers of many on this day when words fail and when the valley you travel is so dark and deep. May the Peace of all peace, the Strength of all strength, and the Love of all love be with you and your son who has shown such remarkable strength and such a fierce longing for life. He knows how much you love him.

Eric, Yolanda, and Noah
Fri Apr 27 10:03:10 2007

My thoughts and best wishes are with the three of you. May god give you strenght and hope. Please know that you have caring friends that are here for all of you. Blessings Nina

Nina
Fri Apr 27 10:00:14 2007

In the name of Jesus I pray that Javid will be healed and that you will know Christ's peace which transcends all understanding.

Sherri Hughes
Fri Apr 27 8:47:34 2007

I am asking for strength and courage as you care for little Javid. I cry for you.

a friend
Thu Apr 26 18:18:35 2007

Thoughts, prayers and much love to all of you. Javid is such a darling and we've not even met yet! Your website is a blessing to many of us. May God bless you as you work and ponder and pray and try to stay strong.

Jennifer Lerch
Thu Apr 26 12:44:53 2007

Dear Javid: You are such a sweet dear little "wee one" and we pray that your little lungs and heart will mysteriously and miraculously work to give you the strength to be a pain in the butt to your mom and dad! Great Uncle Ron sends his love too. Love, Great Aunt Ruth,

Great Aunt Ruth L. Guengerich
Thu Apr 26 12:07:21 2007

I am speachless and in tears as i read about what you and Javid are going through. I cannot imagine the heaviness you must feel in your hearts. No one should have to make these decisions and I wish anything could make some of this better for you. You are all in my thoughts and know that we are all here for you. I will be thinking about you and your precious boy. Love Sara (pensy nurse)

Sara Cohen
Thu Apr 26 12:05:18 2007

You are not alone... I hope that all of our prayers, thoughts, and visions of your familly are holding you up.

Tami
Thu Apr 26 11:53:17 2007

You have opened yourselves to all of us so completely with your honest,raw emotions and your hopes and your fears since the birth of precious Javid. Right now my words can't express what my soul feels. I cry, and I pray, and I hold you very close...

Much love, Aunt Ellie
Thu Apr 26 9:32:00 2007

We're thinking of you guys -- a lot; in fact, a lot more than the number of our posts to this guestbook would indicate. Please know that we're with you.

Julia, Lucas and Doug
Thu Apr 26 8:07:16 2007

My thoughts are with you guys. Whatever decision you make will be the right one. We are all here for you.

Therese (Pennsy nurse)
Thu Apr 26 4:41:36 2007

Tony and Ana Lisa, I'm so sorry you have to go through this. I can only imagine the pain you must be feeling. I'm praying for you all tonight, that you can still feel hope, God loves you very much and I'm sure is especially looking out for you these days and will help you make the right decisions if there even are right ones. Remember that often there is no RIGHT decision, God walks with us in whatever decisions we make when we make them to the best of our ability. I hope you feel lots of support in whatever decisions you make. We all love you.

Ceci
Wed Apr 25 23:18:29 2007

I have no words. I am so sorry. My heart breaks along with your's.

Nurse Patti
Wed Apr 25 22:53:21 2007

I am weeping at all the love that surrounds you and Javid. Words are inaduquate to express the pain of this time but it seems there are some walking with you that have been down this road. Know you are all held in the light and love.

Cindy
Wed Apr 25 22:24:59 2007

Tony and Ana Lisa, Thank you for keeping us updated on what's happening with Javid--difficult as it must be for you to put it into words. I'm so sad about what you're going through right now. I pray that God's loving arms will just carry you through right now. Love and prayers for all 3 of you.

Cousin Louisa
Wed Apr 25 22:09:22 2007

Just know that both of us are praying many times in the day for all three of you. Precious little Javid is being held in arms of God, even as you also are. We are grateful you allowed us in on the journey thus far. Your messages and courage have inspired us. As you feel that courage wearing thin, please know that a whole host of us are holding you up. The one who cares the most is with you.

Aunt Emma
Wed Apr 25 21:09:58 2007

One day at a time. Hang in there, AnaLisa and Tony. Just know that we love you and think of you constantly. Javid, be strong, buddy .. you are a fighter!

Chan
Wed Apr 25 20:51:40 2007

Dear Tony and Ana Lisa, I am praying that you may feel God's arms holding you right now -- holding you just as tenderly and lovingly as you touch and hold and rock and wash and care for baby Javid.

Maribeth Longacre Benner
Wed Apr 25 20:15:51 2007

I HAVE BEEN PART OF YOU THREE, SINCE THIS HARD JOURNEY STARTED.I READ EVERY DEVELOPMENT LITTLE BY LITTLE AND WE PRAY, ME AND MY DAUGHTER.I TOLD ANA LISA THAT I WANTED TO WRITE TO YOU WHEN THE BABY WAS FINALLY HOME> TODAY, I'M FEELING THE NEED TO SAY:" MIENTRAS HAY VIDA ,HAY ESPERANZA." HANG IN THERE YOU THREE! GOD LOVES YOU, AND SO WE DO!

a friend
Wed Apr 25 20:10:07 2007

It's so hard to come up with the right words at times like these. All i know to say is that you are in our thoughts continously. We send bigs hugs your way.

Michele & Vince
Wed Apr 25 20:09:38 2007

Hi, I'm out of words. I cannot imagine what you must be going through right now. Just know that you are in my thoughts(and everybody else's at Pennsy)all the time. And I hope that you somehow find the strength to make a decision, whatever that might be... Vildan

Vildan
Wed Apr 25 19:46:36 2007

All I can say is that this really sucks. Such a seemingly idyllic month of growth and calm followed by this kind of precarious existence must feel like a punch in the gut--the kind that leaves you gasping for breath almost as much as your son. Keep breathing, AL and T. . . in and out. And Javid, there are lots of us out here breathing along with you.

a friend
Wed Apr 25 19:25:23 2007

Dear Tony and Ana Lisa- My prayers are with you and little Javid for courage, strength, grace...and maybe even a little peace...to meet whatever comes today and in the days ahead. Please do not hesitate to request a CHOP staff chaplain to come day or night...your nurse can do this for you...they are available to talk or just to be with you if you need it. Please also let us know at West Phila. Mennonite if there is anything we can do. May you be surrounded with love, Julie (CHOP chaplain and elder at WPMF)

Julie Prey-Harbaugh
Wed Apr 25 17:49:28 2007

Tony & Ana Lisa, My heart just breaks. I wish words could form arms and wrap around you and you could feel the love, support, and comfort we so desperately want to have flow over the 3 of you. Know you are in our prayers and all I can say is this stinks! (I know a more profound word should be put in there....but there are kids around! :-) We love you!

Rob, Tami, & boys
Wed Apr 25 15:29:27 2007

I am so sorry, Tony & Anna Lisa, to hear about this. May you feel the arms of this entire community surrounding you, embracing you and weeping with you. I pray that God will lift you and Javid up and give all three of you peace for the ongoing journey!

Great Aunt Mary Swartley
Wed Apr 25 15:27:42 2007

We are aching and hoping with you. May you feel hundreds of loving arms around you so you don't have to "strong" this one...just survive it. Love you.

Lisa Mitchell-Bennett
Wed Apr 25 14:20:18 2007

Hello Tony & Anna Lisa My thought & pryers are with you & BabyJ right now. I can't even imagine how hard this must be for you. Please take comfort in knowing that as his parents what ever decission you make will be the best because you love him and no one knows him better than you.

Vashti Bledsoe
Wed Apr 25 12:53:27 2007

We too are praying a lot. When you express such raw emotion I just pray that God will hold you three in his big hands and give Javid the healing he needs. Your updates and humor and courage has been a testimony of your faith and strength. May God carry you through this tough time and may you rely on Him for everything. Please know that we are here to support you in any way we can. Erica

Erica and Joey
Wed Apr 25 12:11:33 2007

Thanks once again for your candor as you take us along your precarious journey. Know that there are many of us who weep and melt with you.

Mike Derstine
Wed Apr 25 10:13:43 2007

My tears are spilling on to the keyboard as I write this...I weep for you and this part of your journey. I liken it to our experience with Sarah...we were on a merry-go-round/ roller coaster of uncertainty...we wanted desperately to get off. But how can you want to get off when you don't know what the outcome will be or it means that she has gone to be with her great grandparents and others?? So, I pray for you and hope you find strength and love to surround you in what ever happens. Lots of Love, Jennifer and Kendal

Jennifer North Bauman
Wed Apr 25 10:03:37 2007

Hey T & A, I haven't spoken to you so long. But, I've been sitting here in Iowa keeping watch and holding all three of you in my heart, mind and prayers over the last many months. I just want you to know that this continues to be true, even as I ache with you. Much, much love, Jen

Jen Harvey
Wed Apr 25 8:59:57 2007

As I sit here reading your update, I can only imagine the thoughts going through your mind. There were many a day, when the both of you would turn that corner at the Pennsy NICU only to see me on the couch, wheeping and mulling over some of the same options you are currently faced with. At the end of the day, the two of you will make a decision with no right answer but if I can offer you any comforting words at all its this, Javid has captivated hundreds and thousands of people around the world. His strength throughout this entire ordeal is nothing short of miraculuos and the love the three of you have for each other can never be broken. My wife and I when faced with the ultimate decision looked to each other, we blocked out everything, what the doctors had said, what the nurses had said, what our friends and family had said and we made a decision, with Logan's best interests at heart. Stay strong, know that your son has had more impact in this world in just 6+ months then most do in an entire lifetime, and know that everyone loves you guys and supports you.

Logan's Daddy
Wed Apr 25 8:29:21 2007

When I was a little girl, my father once said with a twinkle in his eye - that due to my obvious and reliably consistent enjoyment of food that he would put me in the hospital if I ever stopped eating. When you are misspelling and there are no crazy hyperlinks to non-associated fascinating and compelling parallel stories... well, I'm afraid it's hospital time for you too. My heart is holding you as tight as I can....

Marcia
Wed Apr 25 5:49:55 2007

I happened to be at Paul and Ann's house with my kids playing croquet when you called. I wish for you wisdom and grace as you make decisions over the next few days. I send loving kindness to surround your family.

Emily North
Tue Apr 24 20:06:29 2007

Tony and Ana Lisa, I'm sorry this day is so very hard. We are thinking about you and hoping for the best.

Tami and Wanda
Tue Apr 24 16:57:38 2007

I am thinking about the boy every day. I have been off for the past week and decided to check in on your web page. Looks like so much is happening (when it rains, it pours) and I am so sorry that things seem to never be easy riding for you three. You have remained so strong thus far and I know that Javid is a tough guy. My thoughts are constantly with you and the "nibblet". Sara Cohen (Pensy nurse)

Sara Cohen
Tue Apr 24 14:51:51 2007

We are weeping and laughing along side of you -- holding you close in our hearts and in absolute awe and amazement at your fortitude. Hoping that things ease up soon. Sending a big long hug!

sandy and martha
Tue Apr 24 12:44:15 2007

Guys i am sorry to hear that things are not going well. I will keep you guys in my thoughts. I hope that this is just another bump on the road...stay strong!

Suzette
Tue Apr 24 9:43:05 2007

I am a student of Dr. Marcia Good, I was moved and inspired by your story. Its amazing!!! I wish you guys all the best!

Shauntel Marcin
Mon Apr 23 18:36:44 2007

Thanks for today's updates after what was a tough weekend. May this week bring calm and hope in the midst of anxiety.

Auntie Bev
Mon Apr 23 17:50:55 2007

Tony, Ana Lisa and Javid, we want you to know that were praying our butts off for you. I have asked all of those people who have and continue to pray for Logan to please also add Javid to there prayers. As the two of you know better then anyone, these children are incredibly special, they are born fighters and the progress that we have read about over the past few weeks has been remarkable. Every time you get good news, just know that the Malc's are high fiving right along with you. Stay strong and know that were all fighting alongside your little trooper.

Logan's Daddy
Sun Apr 22 19:16:02 2007

Thanks Javid for the great pictures...and your thoughts. We love seeing you, whether sleeping or awake, making statements with your interesting shirts. We can't wait till you come home and we can hold you and tell you stories...maybe even some about your mama. Meanwhile, we're keeping you in our thoughts and prayers. Love, GranPaul

GranPaul Yoder
Sat Apr 21 19:36:19 2007

I love the dear picture of Javid looking up at Ana Lisa and the funny pictures of the nurses. I am so happy that Javid can HEAR, that he passed that test really well. I am sorry about him having to have a trach; perhaps you will be able to communicate with Dave and Maureen Parker as to their experience with their dear son, Trent. Sometimes just knowing others have experienced something similar helps. Keep up the kind humor! And music helps too!

Glenda
Sat Apr 21 0:34:40 2007

What wonderful news about Javid's ears! Chalk one up for the good guys. Here's to the awesomosoist family of three ever! Love you guys! MCAA

Chan
Fri Apr 20 20:07:38 2007

Hi Guys sorry i haven't dropped by in the past few days but I got sidetracked with my own stuff. JAVIDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDD I AM HAPPY YOU CAN HEAR ME SCREAMING YOU GOOOOOOOOOOOOOOOOOO BOY, YOU CAN DO IT, yaaaaaaaaaaaaaaaaaaaaaaay! lOVE, Suzette

Suzette
Fri Apr 20 9:05:53 2007

I just recieved Javid's web page. I wanted you to know that you continue to be in my thoughts and prayers. Even though our little guy is home now I'm sure that in the not too distant future you will be experiencing the same joy as we are at having your baby home. Stay strong and I wish you and your family all the best.

Logan's Grandma
Thu Apr 19 10:27:58 2007

I saw your update and I wanted you to know that we are all here for you. If you need anything let me know. I love that you are still cracking jokes at such an intense time. Just know that Javid is strong and he has the best of the best working on him. Oh... and just for the record... I am not non-nurse patti. Positive vibes being sent your way.

Nurse Patti
Thu Apr 19 10:23:57 2007

patti's got a great idea there, if i write it a few times maybe i'll remember i'm just a visitor:):) he looks FAB In his new big boy crib!! can't wait to see yous again! hey analisa... tickle tickle:):)

non-nurse jilly jill
Tue Apr 17 11:36:33 2007

Javid looked so peaceful today! Thanks for letting us stop by and see him. He is looking great.

Non-Nurse Patti
Mon Apr 16 16:33:32 2007

Love the latest pictures... especially the ones of Ana Lisa giggling from the tickling! And Javid is so adorable! It's good to hear he is doing so well in his new digs. We keep sending all sorts of prayers and positive vibes your way. We love you all!

Kris
Sun Apr 15 20:01:44 2007

Thank you for the great pictures and new update celebrating Javid's 6 month milestone! You both are amazing in what you are going through. Ana Lisa, what you have and are experiencing physically, emotionally and in your spirit is simply more than one person can bear. I know I was so thankful years ago far away for my copy of "The Womanly Art of Breastfeeding" by La Leche League but you are a Star! And Tony, I know you help her and many people laugh and that is a special gift to be able do in a way that is helpful and not hurtful. Blessings to you and your families as you continue in this long, long journey.

Glenda
Sun Apr 15 7:01:35 2007

A raising of java-cups everywhere to the miracle baby and his miraculous parents as well at the 6-month-mark. The updates are scary and wonderful -- thanks for sharing them so we can keep up with all of you. I can't imagine being as resilient as you all are but I'm hoping it's in the genes for the rest of us Lappsters too. We think about all of you often and second-cousin Nicholas hopes to introduce Javid to the joys of Thomas the Tank Engine sometime in the future.

Jessica Lapp
Sat Apr 14 13:32:27 2007

If this site only had sound for guest comments... I would say in my cute baby talking voice... Oh my gosh...Jav is soooooo cute!!!!! (Tony...work on that voice over so people know what I am talking about) What GREAT pics. (even if you are totally bothering him, TONY!) What a HUGE smile he put on my face! See you soon.

Nurse Patti
Fri Apr 13 23:11:52 2007

I must commend AnaLisa as well for continuing to pump. Something made we wonder this exact thing just the other day. What an amazing woman! The latest pictures of Javid are absolutely adorable. He is getting so big! We love you! The Meshews

Chan
Fri Apr 13 20:09:03 2007

Happy birthday Javid. And congratulations AL and Tony. And AL, as a lactating woman, I want to echo Tony's thoughts about what an amazing job you're doing. Pumping is a drag -- that you've done it this long is amazing. I vote for a statue of you outside of La Leche.

Carrie
Fri Apr 13 17:52:01 2007

<<"I actually like to think of myself as the 'breast milk' of social interaction. . .">> I am downloading this onto a thumb drive for future use should Uncle Breast Milk ever decide to run for office.

Publius Sneevesus
Fri Apr 13 8:16:55 2007

Thank you for your updates and pictures! Wow! What a Journey you are on. Our thoughts and prayers continue to be with you all the way from Puebla! Your updates are very informative and fun. The humor sure helps us who are reading and keeping up with the news. Javid sure has grown! We look forward to visiting you when we get to PA in July.

Erica and Joel Smith
Thu Apr 12 12:17:07 2007

Happy (belated) 6 month birthday Javid! and happy 6 mo anniversary to you too AL! You are amazing! We think of you guys all the time and are holding you very close in our hearts! We love you

Pam, Gregg & Alex
Wed Apr 11 18:54:42 2007

Sketchy analogy INDEED! Of course, it is true that my presence is known to be just as "delicious and nutritious" as breast milk is to the wee ones (I actually like to think of myself as the “breast milk” of social interaction, flowing freely toward the frequent cries for more and leaving no one unsatisfied), however it’s absolutely impossible to believe that either I or A.L.’s milk could be anything other than completely helpful to Bev’s career or Javid’s belly respectively. Obviously, neither Tony nor Javid’s doctors knows what they are talking about :) Happy 6 months, J-Fynn! I love you SO much!

Uncle Breast Milk
Wed Apr 11 15:10:07 2007

Great post today, Tony and wow do we ever share your admiration of that amazing and admirable Ana Lisa!. Your sketchy Uncle Dave/Aunt Bev analogy, however, gives me pause about my earlier affirmation of your sanity. :) But I appreciate the effort to make our feeble minds understand all the medical jargon. So glad you and he are having a good week.

Auntie Bev
Wed Apr 11 11:13:22 2007

We all miss you too. Everyone here is rooting for him and asking for him. He looks absolutely fabulous in his overall outfit. I cannot get over the blond peach fuss on his head. Any word yet on the hearing test? Talk to you soon.

Nurse Patti
Wed Apr 11 2:28:11 2007

Hey all you lovely Pennsy people. JAVID MISSES YOU SOOOOOO MUCH! Oh, right and so do we :-) He's down on his pressure settings since yesterday and so far so good. We'll take a picture so you can see! Thanks for writing in to the guest book everyone...

Ana Lisa
Tue Apr 10 22:16:08 2007

Hey guys, just checking on your boy, he looks great! Hope all is well and I'll be coming for a visit soon. Miss you guys!

Therese (pennsy nurse)
Tue Apr 10 20:54:06 2007

Happy six months Javid! Your outfit is sooooo stylin'. You look quite happy and content in your new place...but don't forget about us here! Love Sara

Sara Cohen (pennsy nurse)
Mon Apr 9 20:24:40 2007

Happy happy happy birthday, happy happy happy birthday, happy happy happy birthday, to you, to you, to you, OLE! I love you and miss you with all my heart. Say hi to your mommy and daddy for me! Katie the Respiratory Lady

Katie the Respiratory Lady
Mon Apr 9 18:38:09 2007

I think of and pray for Javid frequently. May the new life we especially celebrate over Easter breath health into Javid's lungs!

J. Mark
Mon Apr 9 11:09:50 2007

HAPPY 6 MONTHS JAVID!!!

sUZETTE
Mon Apr 9 8:52:55 2007

Thanks so much for letting me visit with you and Javid. It was really great seeing all of you. I am just sad that I couldn't stay longer. Hang tough and keep the humor going. And p.s. make sure they clean out those ears... there is nothing like a clean, comfy baby :)))) See you soon.

Nurse Patti
Sun Apr 8 22:32:32 2007

May this week have no dropped shoes! What a great new set of photos. Oh, and here's confirmation from another sibling that you are both most sane and only the most wonderful kind of silly.

Auntie Bev
Sun Apr 8 22:24:04 2007

Happy Easter and Happy 6-month Birthday Javid! Lots of love to you guys.

Margaret & Brian
Sun Apr 8 21:49:41 2007

You are responsible for my wondering, repeatedly, what would be the equivalent of a new ball in a neonatal unit....

cuz
Sat Apr 7 23:24:32 2007

OK, all I can say to that last comment is...preeclampsia, people!

Ana Lisa
Fri Apr 6 17:42:51 2007

Yay for Javid stability! And can a coworker chime in about overthinking if they're PRO overthinking??? Ana Lisa and I need to stick together on our hypochondria...I mean perfectly valid frequent health-related concerns... :)

Glenna
Fri Apr 6 16:09:54 2007

Hey guys, just wanted to say hi and how good it is to hear and see that Javid is doing well! You guys are very missed around here!

Tania (Pennsy nurse)
Fri Apr 6 15:31:56 2007

YAYYYYYY FOR TWO GREAT WEEKS... AND MORE TO COME. LOVE YOU GUYS

SUZETTE
Fri Apr 6 9:52:39 2007

<<. . . we're nice. And no, siblings are not allowed to weigh in here.>> This is a clear invitation. Let's just say that you have become nice over the years with our guidance. :) Also, there's a fuzzy line between silly and insane. . there's silly insane and then there's mean insane, and yous are in the first category. Tee hee. You guys are getting a well deserved couple of good weeks.

Sneevel Knievel
Fri Apr 6 8:26:34 2007

Glad to hear that Javid is stable and improving, even if slowly. We miss him here at PAH but know that you will fit in wherever you are. And Javid is quite the charmer so you've got that working for you! Hang in there...keep your humor up, and don't let the CHOP folk be too intimidating...they are there to care for Javid same as we were! Take care!

Sara Cohen, Pennsy nurse
Fri Apr 6 2:40:55 2007

We hope you are enjoying your new digs. I am sure the new nurses and entire staff will love you guys, don't worry! And I don't think for one second you need to worry about little Javid not getting the best care possible. There are few people in that business that are not wonderful people. Take care and we hope this stable, calm time lasts a long time. We continue to think of you all the time and our positive vibes are floating your way every day. Love to all 3 from all 4!

Chan
Thu Apr 5 19:33:00 2007

Just wanted to say hi and let you know that you're being remembered by friends from all over the place! So glad to see the recent progress with your tough little guy! Blessings to you all and Happy Easter!

Anne Witmer Aguirre
Thu Apr 5 15:59:27 2007

I have to say... it is very weird coming into work and not taking care of Javid. I actually hate it. I miss him and you guys. Take care.

Patti- pennsy nurse
Thu Apr 5 0:00:30 2007

hey there! i have not been able to check the site in a few days. i am so glad to hear that he is pretty stable. what is it going to take to get rid of that infection in his lungs!? it must be sooo frustrating. well, keep us updated. oh... i cannot believe how HUGE he looks. and that smile is just GREAT! see you soon.

Patti- Pennsy nurse
Tue Apr 3 17:16:36 2007

Oh ye of little faith.

Vildan, you're just jealous because you've yet to experience the wonders of breast milk in your tea...

We miss you guys tons.

Tony
Tue Apr 3 11:06:10 2007

Tony I have finally seen the "got milk" video:0 I don't believe one second that that's breastmilk you're drinking. I'm still challenging you to drink it in front us, Pennsy nurses!! Joking aside, I hope you guys are doing well. You're missed! Take care,

Vildan
Tue Apr 3 10:34:07 2007

I love the new digs, but I miss Javid's beautiful little face. It sounds like things are going well. I can't wait to read his next update! Good luck little man! Love, Katie

Katie The Respiratory Lady
Sun Apr 1 22:06:15 2007

I came in here tonight after three days away to learn all about darling Javid and also about how it is going with you, Son (that means you, too, Ana Lisa) and I learned a lot - thank you! AND my, all that about hooking up for a wonderful "free" way to get fast internet access. I wanted to know more - go through the commode - flush to get it connected - wait one hour - uh HUH! April Fool! It is not nice to fool Mother Nana!

NanaLapp
Sun Apr 1 21:42:08 2007

We think about the three of you daily and don't say amen at night before we say a prayer for Javid, Tony and Anna Lisa, you have meant so much to us, you have given us strengh to fight along side our boy and as I have said in the past, I can't wait for the day when our two little boys have a play date together. Stay strong and know the three of you mean the world to us. Matt

Logan's Daddy
Sun Apr 1 19:41:12 2007

Hi guys i am so ahppy to hear the surgery went well. I was thinking of all of you. JAVID I AM ARE VERY PROUD OF YOU LIITLE BOY! LOVE

Suzette
Sat Mar 31 15:00:00 2007

Hey Tony and Ana Lisa, Thank you so much for keeping us updated on Javid's progress. I am glad the transition to CHOP seems to have went fairly well. I cannot even imagine having to wait so long to bring Javid home. I am so sorry that you still have to wait longer... I will continue to pray for your strength and patience as time goes on. Hang in there.

LaRee
Thu Mar 29 22:42:41 2007

honey i know, i know, i know times are changin...it's time we all reach out for somethin new, that means you too!! i only want to see you laughin in the purple rain...purple rain, purple rain....

?????
Thu Mar 29 21:43:11 2007

Good luck tomorrow with the brochoscopy. We do hope that there is good news that comes out of it! Tony and AnaLisa, you are two amazing people. I know I have said this before, but Javid is one lucky boy. I hope tomorrow's procedure brings some answers if nothing else! We love you! MCAA

Chan
Thu Mar 29 19:56:35 2007

Hey Tony and Ana Lisa-- just wanted to let you know that Rod and I have been following your updates on brave boy Javid and his crazy amazing parents. We wish you the best with the big hospital move and everything that goes along with it, and hopefully you will soon be able to bring that little guy home. And, I wish we weren't so far away so we could come and see all of you. --Love, Tisa, Rod, Jordan, and Sophia

Tisa
Thu Mar 29 12:12:24 2007

Javid, are you behaving because you are leaving PA Hospital? Hey, great move. That’s it, fool’m that way. Then….let it rip and let’m have it… I mean big time let them have it. You’ll be a better babe (as in short for “baby”, not “gorgeous diva”) for it.

Roberto Rodriguez Sr
Wed Mar 28 13:45:20 2007

someone must have told javid he's going to chop today... he's been on good behavior all night, o2 50%, i think he wants to stay:):):) (or maybe that's just me!)

nurse jillyjill
Wed Mar 28 4:05:15 2007

Just a note to wish Javid safe travels as he heads over to CHOP. How lucky that the staff at CHOP now get to share in Javid's journey AND get to know such bright, fun, amazing parents! Settle in, sweet Javid. Can we visit you again soon?

Margaret & Brian
Tue Mar 27 22:24:57 2007

Hey there. I will be so sad to see Javid go...he's such a little sweetie, but hopefully CHOP will work some wonders on him. Once again, the two of you are amazing and remain so strong through all of this. You have so many people pulling for you...keeps your chins up!

Sara Cohen
Tue Mar 27 3:15:37 2007

Keep up the positive outlook - it certainly can't hurt! We think of you often and are praying all the time for Javid's and your well-being. He's a tough little guy with great parents. Much love to you all.

Jennifer
Mon Mar 26 10:30:53 2007

Just checking in... waht can i say Javid looks so cute he s adorable. Guys you have made it this far, stay strong and thin that moving to chop help him out and that you soon will get used to it. Love,

suzette
Mon Mar 26 8:39:34 2007

All I can think of now is that God has tiny Baby Bear in His/Her hands. Just as Ana Lisa and Tony are in the Hands of God.. You and me sister, you and me brother are in the Hands of God. Your caregivers(nurses, doctors, etc.) are in God's Hands. The whole wide world is in God's Hands.

Glenda
Mon Mar 26 6:40:38 2007

Hey Tony and Ana Lisa, I've been sort of outta the loop for awhile here. Just a note to let you know we are all still praying the Wee One and I hope that the move to CHOP will go smoothly and that it will prove to be very helpful for Baby Bear. I am so sorry that you are all still having to deal with Javid's issues. Who could have guessed that this would go on so long. How I have longed to see you be able to take him home and be able to fully enjoy the little guy. He is soooo cute! I was going to ask if he has smiled yet, but of course, with that silly tube hangin' around that would make it pretty tough to eke out a smile! Hope you had a great time with the Yoder's this week. I am quite certain there was never a dull moment! When you make your move to CHOP, I am sorry you won't be able to take all those fantastic nurses with you! I am so impressed with them! I miss them already and I don't even know 'em! I can't imagine how you guys must be feeling about it. You'll likely go through some sort of "nurse withdrawal" or something like that! We'll pray for a good week.

Great Aunt Mary
Sun Mar 25 22:35:17 2007

Thinking of you.

Nurse Patti
Sun Mar 25 17:44:13 2007

Tony & Ana Lisa- I'm so amazed at the encouragement and empathy your friends are giving you with this very heavy load you are carrying for your "Baby Bear" as he is "hanging in there". I don't know most of them but feel that they are just "strangers we have never met". May they surround you with their love. Tell Javid that Miss Grace talks to his Nana Lapp often.

Grace Freed
Sun Mar 25 14:46:46 2007

And just to add.... your words on this page, and all those who meet you here create patterns that are a strength for many beyond Javid and yourselves.... Your story meets many strange partners in the place where the "journey circles back" that you'll probably never know you inspired. See the poem "Strange Attractors" by Robin S. Chapman at: http://sprott.physics.wisc.edu/sapoem.htm.

Marcia
Sat Mar 24 10:07:59 2007

Thinking about the "aint gonna go there" moments... Thinking about how we measure our courage by the ability to look the "worst case scenario" in the eyes and pluck the horror right out of it's heart… Like Martin Luther King's quote "Our lives begin to end the day we become silent about things that matter." You are SO alive... just like your friend who said you are SO posted on YouTube. I think you'll live forever... :-) But... getting back to those "worst case scenarios" that can't be stared down, or faced square on... and when we try, we get OUR hearts plucked out instead of the other way around... (is that what makes gray hair???) It’s hard to find ways of talking about them in our society. An article, "The Dignity of Denial" eulogizes Roosevelt's mastery of it, and I found a psychology article called, "The role of denial in clinical practice". Then there are elusive quotes.. like... from Confucious, "Silence is the true friend that never betrays." and Lao Tzu, "Silence is a source of great strength." Those articles are TEN and FIFTEEN years old respectively, and Confucious and Lao Tzu are many many CENTURIES old (lots older than Martin Luther King). So.... I guess we don’t think like that anymore. If adversity can’t be triumphed over or made into powerful words, I guess it doesn’t exist. So On with it..... we won't talk about it either out of a profound and COURAGEOUS denial that such things happen in the world. May all with abilities in denial fortify you greatly!!!! Cheers to the little fellow who is breathing his way into the next decade... and to his Mom and Dad who are magnificently alive and whose self-described flaws are such a work of art....

Marcia
Sat Mar 24 9:20:14 2007

Just checking in. I've been wondering how the little guy is doing. It sounds like he is progressing ok?

Ceci Good
Fri Mar 23 22:04:41 2007

Hi Ana Lisa and Tony Wishinng a smooth transfer to CHOP. A gre. We need to think of what is the best for Javid at this point. All of you have had the wondertful experience of having a great emotional support,and excellent care for Javid. It does sound that the people at Pennsylvania Hospital are amazing.Again caring is found in the details. Thanks for sharing the daily progresses and challenges. Know that there are many people rooting for Javid and both of you. Blessings, Nina

Nina
Fri Mar 23 11:45:58 2007

Just wanted to say that you guys have been amazing through all of this! You and Javid remain in my thoughts and prayers. Just continue to keep your heads up and concentrate on the here and now, which you guys do so well!

Tania (nurse)
Fri Mar 23 9:13:21 2007

I admire your courage to honesty talk about the hard stuff. I have always admired you for that. I think an individual's true character emerges under tough circumstances, and not surprisely, you two are proving to be tough, sensitive, loving, amazing people. You and Javid are always on our minds and in our hearts! Love, Lisa, Nick, Caelan, Malcolm, Isabella

Lisa Mitchell Bennett
Thu Mar 22 21:39:27 2007

I hope all is well? I am trying very hard not to call for an update on my vacation :) I hope Javid is doing okay. I miss him :( (hint-hint)

Patti
Thu Mar 22 11:28:40 2007

Thinking of you guys.

Michele
Wed Mar 21 6:28:07 2007

Hang tough guys. Just thinking of you and Javid on my vacation. Keep us updated.

Patti
Mon Mar 19 14:00:04 2007

Tony and Ana Lisa: Thank you for the very helpful updates from recent days. As Javid's story develops and unfolds it is so wonderful to have access to this website. You are handling everything so admirably. Be generous in taking care of yourselves! I hope the Yoder clan has fun and that Tony handles himself calmly if you play any highly-competitive games. :)

Bev
Mon Mar 19 13:02:39 2007

Packing us up and taking us with you? I see a road trip in our near future! You, Tony, will not be in charge of snacks and beverages!

nicole
Sat Mar 17 13:00:19 2007

i miss javid! i think i'm in love with your son. :) hehe.

jilly
Sat Mar 17 12:33:59 2007

I second that one Jill! Go ahead Tony we dare ya!! YUK!

Nurse Patti
Sat Mar 17 6:29:02 2007

anybody can drink breastmilk on a video!! i wanna see it in person!!! and maybe i'll fortify it so you can taste what javid gets!! did i mention that was very disturbing?

jillyjill
Fri Mar 16 11:26:35 2007

Here in Prague, I can still keep up with Javid. We check almost every day. I love the updates, but am not able to get the breastmilk video. Oh well, according to several reports it must be well worth viewing. Love you all three. Will be looking forward to seeing you again in person, Javid. Love, GranPaul

Paul as in GranPaul
Fri Mar 16 10:27:11 2007

I got the inside scoop on the breastmilk video today and I am STILL feeling slightly nauseous! To quote another poster- EWWWWWWWWW :) Glad to see that your senses of humor continue on and that Javidcito keeps growing!

Glenna
Thu Mar 15 22:01:09 2007

Just dropping by, Javid looks so cute with that outfit.. I am happy that you were able to hold him :) hugs and kisses...

Suzette
Thu Mar 15 14:17:00 2007

Just wanted you to know I'm thinking of you all. This weblog is great. Nice to see little Javid interacting with all his family and friends.

Ceci Good
Thu Mar 15 12:39:14 2007

Tami introduced me today to your website since I've been asking her often how you all are doing. I loved the wit and humor, great photos, too. Blessings to the 3 of you as you face each new day!

Grace Marie Gerber
Thu Mar 15 5:22:08 2007

Hey Tony! Cheryl the La Leche League Leader here, and you should have heard me laughing at your Got Milk? video! As an LLL Leader, working with HCPs is often challenging--your video shows me that clearly, I've been using the wrong approach all these years! I've been much too gentle.... I was surprised and saddened to read the drs. prognosis last week, but will continue to hope for the best. At least he has the best parents. Positive energy streaming your way....

Cheryl Peachey Stoner
Wed Mar 14 20:11:16 2007

I am not a nurse but I did just view the breast milk video and EWWWWWWWWWWWWWWWWWWWW! You are so getting posted on YouTube.

Sneeven
Wed Mar 14 10:48:56 2007

You guys are truly amazing. You always seem to put a smile on my face. Javid is so lucky to have such humorous parents. To be going through all of this... and still trying to keep the jokes going- is just GREAT! I am so glad to see that your spirits are up!

Nurse Patti
Wed Mar 14 9:08:15 2007

Hey AnaLisa and Tony - You guys are truly amazing - and so is WEEBOY - who is growing more adorable by the ounce. Take care of each other, continue to use humor as much as you can, and "don't let the fear get the best of you." Sending you love, prayers, energy and courage.... marcy w.

marcy witherspoon
Tue Mar 13 20:11:35 2007

Ok, after viewing the "got milk" video, I think it may be time for a little intervention... Perhaps I will go add a wikipedia entry under the word intervention and reference Tony!

Sarah
Tue Mar 13 18:30:16 2007

Hey T & A, Been reading the updates, checking the pics, thinking of you lots! So good to see the humor coming back and positive talk... Hang in there Javid, keep up the good work! Hugs & kisses to all of you! Unc Mario

Unc Mario
Tue Mar 13 9:00:27 2007

Hey guys, I've been reading your updates daily, holding my breath, offering up prayers, and rooting loudly for the little guy (and for your sanity). I know only too well what those phone calls in the morning---breath held---to the hospital are like...the ups and downs and all the rest. God is with your entire family! Our thoughts are with you as well. We care deeply.

Colleen (of the
San Antonio , NM USMon Mar 12 23:51:39 2007

We checked out your website again tonight after Amy and kids popped in to say hi. We've got the three of you in our thoughts.

Tami
Mon Mar 12 20:39:33 2007

Hi Tony and Aunta Lisa! It's Mimi here on the other side of the world being an avid follower of Javid. We check the website on a near daily basis. The Photos (and your words) are precious. Can hardly believe it's the same little guy I saw way back there when Javid was in the 2-3 lb. range. I need a visual update! As Amy often says, "he's soooo cute!" Glad to hear Philly is getting warmer. It will make our return home easier. I miss everyone there. Stay strong and I'll see you soon.

Pauline
Mon Mar 12 19:22:07 2007

Hi Ana Lisa and Tony I am glad to hear that Javid is growing and holding his own. Your updates are very comforting since it shows all your love, caring and strenght. Your sense of humor is just great. Just thinking of Javid noticing you and you noticing Javid oticing you. Love is in the little details. Thinking of all of you and wishing you the best. Nina

Nina
Mon Mar 12 16:13:00 2007

I am truly amazed at your ability to keep your wits and your humor about you during this whole situation. I check in on the little man every time I work and he continues to look adorable and bigger every day! Keep your chins up when you can and know that there are many people who love here in the NICU!

Sara Cohen (nurse at Pennsy)
Sun Mar 11 4:16:07 2007

that video.... oh my. From this distance, limited to what I can read and catch in pictures... that is the most moving little video. I love his eyes.

Marcia
Sat Mar 10 23:56:37 2007

Great Auntie Emma and I trekked by train today to visit Javid - an afternoon for "talk it over" sister time going and coming. And then a shared interlude in the Javid Fynn Alcove - Javid thought we sounded alike and grinned (air bubble?) instead of grouched through Nurse Tania's roll-over for all kinds of important details i.e. a diaper change, guck drawing from his lungs (very little today! blood pressure check, tube tugs and reattachings - and yum! mommy's milk. We finally left after a few more little pats reminding Javid we loved him, plenty of people "out there" love him and God loves him. Weighing in at 7 pounds 2 ounces today --- this little boy is downright handsome. Breathe easy, Darling Baby Javid.

Nana Lapp
Sat Mar 10 22:08:49 2007

We love you all a ton and think of you daily. Glad to see Javid got a visit with his Uncle Carlon... I haven't seen him in a while so I enjoyed the picture. Our prayers are for rest and strength for you three.

Kris, Pete, Emma, Andrew
Fri Mar 9 18:37:15 2007

Just want you to know you are continually in our thoughts and prayers. We love you guys. Try to get some rest and hang tough.

Chan
Fri Mar 9 15:34:16 2007

To all of you, we and the congregation at Plains Mennonite Church in Lansdale continue to pray for the loving arms of your heavenly Parent to envelop you just as you cradle Javid. Rest in the strength and gentleness of God's love as you regroup. The other Marcia's advice pertaining to resting during labor seems very relevant.Blessings to all of you. With love and some understanding of your burdens from the grandparents of little Trent, our little "wee one."

Marcia and John Parker
Fri Mar 9 14:41:14 2007

I read this daily to see how Javid is doing. My heart truly goes out to you. I've never met you but feel through these updates I have. You are both amazing parents and Javid is so lucky to have you. I'm praying for little boy and you both.

Friend of the Family
Fri Mar 9 12:17:42 2007

Just a note to Javid, and parents. Carlon & I are in Heidelberg Germany and love you from here. You are still continually in our thoughts & prayers. Will be watching for updates till we return on the 19th.

GranPaul Yoder
Fri Mar 9 10:47:04 2007

Hi Ana Lisa and Tony we have checked your website weekly, sometimes more; we wanted you to know we love you and admire your whole range - the funny, the heartache and your ability to keep communicating. You both and Javid are in our prayers and as we go to SF to present our work, we are bringing you with us. A big deep bow to the boy and hug to you! Martha and Sandy

Martha and Sandy
Fri Mar 9 9:31:11 2007

Hey, so good to see Carlon on here! Same hair as Javid, huh! You guys are in my thoughts and prayers daily.

Cheryl Y.
Fri Mar 9 8:16:41 2007

You guys are in our prayers every day. I read the journal and marvel at your courage. I just want to hold you both in my arms and rock you until you fall into a peaceful, restoring sleep! Well, now, I'm only talking you know, but sure wish I could do something. What precious little eyes look out at you from those pictures! I'm planning to go with Helen down to the hospital on Saturday. Javid will most likely be asleep when I get there, but I just want you to know J. Mark and I both care so much about you and the lil' boy.

Great Auntie Emma
Thu Mar 8 21:25:44 2007

Hey, I just logged on for an update...Wow, You all are incredibly strong and have great courage. You continue in my heart and prayers.

LaVonne Yoder
Thu Mar 8 15:29:15 2007

I cannot even begin to imagine what you are both going through but I often thought I could not bear a certain experience only to learn that I gained a little more strength, a little more courage, and a little more confidence to really stop and look fear in the face. Our little Javid has much to teach us if we are willing to stay with the pain and listen. I wish him and you strength for all those days and weeks ahead as he rests and relaxes and does whatever he needs to do with your help and the help and love of all those wonderful people around him.

Aunty Valerie <decruz@pobox.upenn.edu>
Philadelphia, PA USAThu Mar 8 11:11:49 2007

Talkinga bout courage... i justr found this quote, i thought i will share "Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying "I WILL TRY AGAIN TOMORROW" Guys don't loose hope! love

Suzette
Thu Mar 8 10:36:09 2007

Just wanted to say that I am here for you guys. You guys have shown the entire world how strong you are. LOVE

Suzette
Thu Mar 8 10:01:32 2007

There is a stage in childbirth that midwives like to call the "rest and be thankful" stage... under standaradized childbirthing protocols it is a sort of uncomfortable and unrecognizable bleep in the "progress of labor". But where "progress" isn't being measured in centimeters and hours, women often find themselves suddenly and unexplicably just wanting to lie down and sleep for awhile, in the middle of "labor". If the midwife isn't worried about standardized procedures, a woman might take a nap of 45 minutes or so (with no evident "progress) and then suddenly "get back into things" and get the job done!! ;-) A lot like some animals (like horses), who when giving birth can suddenly stop labor if they feel threatened, and pick it up "tomorrow". This is what I thought of when I saw your post today - telling us that what Javid needs is just some quiet. It's hard, because all we know how to do is measure inches and minutes and pounds and breaths and compare to "probable outcomes" with an incredible need to have all of those measurements "moving". But real life has a lot of pauses and stillnesses in it... So this message touched me... Sounds like you all could use some "non-moving resting and sleeping" too along with any small bits of "thankfulness" you can clutch to your hearts like blankies! My heart is with you. And if you feel skeptical about the "rest and be thankful" stage of labor.., I'll swear solemnly that both the "truth" and the "truthiness" quotient is really high...

Marcia
Thu Mar 8 9:04:23 2007

We have been lurking around in cyberspace on your dear son's webpage for quite awhile now. Anything we think of to say seems trite, so just know that we love you all very much and are in awe of your courage. Thank you for sharing your joys and sorrows in such a personal way. In the midst of it all, try to make time for yourselves and each other.

Ann, Jim, Ben, Sam and Zoe
Thu Mar 8 8:20:03 2007

Tony and Ana Lisa, thank you for the courage in opening yourselves to sharing your churning and fluctuating emotions with all of us on this very tender journey with Javid and for permitting us to walk with you in whatever ways that we each can. Along with ever so many other friends and family members, and many who did not even know you before this, we hold you and precious Javid lovingly in our hearts every day, throughout each day. And we hold onto hope...hope that's bigger than ourselves and how we often define it. Much love-

Aunt Ellie
Thu Mar 8 8:06:46 2007

Wishing Javid a Happy 5 Months today! Keep growing little guy! We're thinking of you everyday.

Michele, Vince, Jacob, Jared & Emma
Thu Mar 8 5:47:47 2007

HAPPY 5 MONTHS JAVID! I am so sad that I could not be there with you. Hang tough guys. Just remember how strong Javid is and that he gets his strength from you! I cannot even imagine how draining this is. We are all here for you.

Nurse Patti
Thu Mar 8 2:17:09 2007

Big hugs are being thrown your way again. From us to you, with the hopes of holding you all tight right now. We're thinking of you and Javid all the time, with lots of love.

Margaret & Brian
Wed Mar 7 22:11:04 2007

Nurse JillyJill sent out a post to all her family and we wanted you to know Javid and his family are in our prayers. I am Jill's sister and me and my husband pastor a church close to Augusta, Ga. We will continue to pray for you and Javid and hope that a time comes soon where you guys can celebrate together at home!

Christi B
Tue Mar 6 14:38:13 2007

So, Ana Lisa, how're you liking the color in the bathroom by now?! You two are a hoot! Seriously, though, I can identify with being nervous about the color of the bathroom! Been there and done that! However, it turned out terrific in the end. Sounds like Javid had a great night last night with his O2 levels. Go, Javid, go! People in our church keep asking for updates about the little guy. I must say, for such a wee one he is becoming quite well-known! Keeping you in our prayers and hearts. Love and hugs.

Great Aunt Mary
Sun Mar 4 17:25:22 2007

Well... over all- some ups and downs throughtout the night. Javid had me running! But it was all worth it... CO2= 51!!!!!! Yahoooooooooo!!!

Nurse Patti
Sun Mar 4 5:37:52 2007

Hey AL and Tony! I just checked the website for the first time in weeks. How are you guys doing? It sounds like things have been up and down for Javid again. How is the Little Fighter doing today? I thought about you all around our birthdays and really missed not being able to celebrate with you guys. My co-workers gave me a nice little party so it was still fun. Hope you found time to celebrate, Tony. Things in Addis have been going well. I love this city! Best of all I have had no health problems this time around. Yippee! Well, just wanted to let you three know I think of you all quite ofen and hope you are well. Give Javid a little kiss from his uncle Jud. Peace.

Jud, from Addis Ababa
Sun Mar 4 2:10:19 2007

Woe is me! I have not been keeping up like I should about this little tyke and all his growth challenges. Bless you, Mommie and Daddie, for hanging in there with all your wonderful humor, sarcasm, etc. Your lives are definitely out of the ordinary! Talk to you later. Love you guys loads. Aunt Ruth

Aunt Ruth
Sat Mar 3 19:42:03 2007

Wow, I had no idea there was this guestbook. Here all along I've been coming online to check out Javid's progress and I had no clue that I could see who ELSE was checking him out! Javid, you are a trouper! We're all rooting for you :-)

Ceci
Fri Mar 2 22:10:28 2007

Wow, what a chunker! I can't believe he is almost 6 1/2 pounds already. That is awesome. Size does matter here! The bigger he gets, the stronger he will get .. his heart and his lungs. AnaLisa, great job on the extra fattening breastmilk! Hang in there! We love you!

Matt, Chan, Aeron, and Addyson
Fri Mar 2 19:51:18 2007

In honor of you, Tony, I at Grape Nuts (with honey, of course -- the only way) for lunch as I read your much-waited-for update. I was sharing feelings with Marcia this morning but you've now satisfied our longings for an update. Thanks. :)

Auntie Bev
Fri Mar 2 12:51:32 2007

I realized i am suffering from dislexia

suzette
Fri Mar 2 11:46:02 2007

Hey guys you have to feel happy that Javid is being atken care of by loving and acring nurses. I know you can't wait until you are able to bring Javid Home, but the time will come. Right now just think that he is getting all the things and the support he needs to get better. BTW i hope the pumping machine is on he he! Love Suzette

Suzette
Fri Mar 2 11:45:21 2007

Can you believe I'm irritated at you? ;-) You haven't updated your progress notes in 24 hours... how can you slack off like that ;-). I've checked about five times since Feb 28, and finally I remembered to check this place because of the wonderful nurses that post updates too! Glad to hear the little tyke is breathing lustily and is hungry for 50 bottles of milk!! Actually, I'm just so amazed you do such a wonderful job of keeping all of us posted. and paint that bathroom Ana Lisa... ;-)

Marcia
Fri Mar 2 7:25:35 2007

Yeh, Javid! I'm cheering you on in every way! Your nurses and doctors are wonderful, aren't they? Now let's work together to send lots of loving thoughts and positive vibes to your parents for renewed energy and health. We love you, precious boy!

Uncle Marion and Aunt Ellie
Fri Mar 2 6:16:09 2007

Guess what mommy and daddy? My CO2 this morning was 54!!! Oh and another thing... I LOVE YOU!!!

Javid
Fri Mar 2 4:03:59 2007

Hey guys! I forgot to tell you that we need more breastmilk. About 50 bottles would be great. Make sure you bring the oldest bottles, if possible, because frozen is only good for 3-4 months. He's a hungry man. Hope you guys are starting to feel a little better. Javid is having a very peaceful night. We miss you! Javid tells me that their is nothing like a good bath from mom and dad. ;) Because we all know how we talk for him :)

Nurse Patti
Fri Mar 2 3:12:12 2007

My heart is so full for you guys. Sending big hugs always to a wonderful family. I am so proud to know you. Love, Gregg

Gregg
Thu Mar 1 21:43:00 2007

queridos tony, ana lisa y javid! just a note to say how very wonderful you are! con amor y carino, bia

Bia
Thu Mar 1 16:59:07 2007

Given the boy's resiliency when things are looking worst, how about the having the next pro sports team be called the "Fighting Niblets"? You know, football helmets bearing a picture of the tyke in an aggressive pose, little bobblehead dolls with ventilators, a whole line of products. This should follow the TV miniseries though.

Sneeven
Thu Mar 1 16:05:15 2007

Hey Ana Lisa, Javid and Tony, have i told you lately how amazing you guys are, well now you know. I am thinking of you guys. AL we miss you at work but please take your time! Love

Suzette
Thu Mar 1 14:01:34 2007

I can't believe I just now discovered this guestbook. Anyway, I've been keeping up with all of the updates and keeping you all in my prayers. He is such a beautiful little guy! Much love! Tonya

Tonya
Thu Mar 1 13:52:50 2007

Hi Ana Lisa and Tony. So glad to hear that Javid is improving and holding on. Blessings to both of you. You have my admiration for being strong and keeping the faith. Thinking of the three of you and whishing the best. Thanks for writing the updates, It keeps me thinking positive thoughts and sending positive energy to Javid.

Nina
Thu Mar 1 13:40:55 2007

When you crawl in your warm and dry hole in the ground, know that God is there too. God is holding Javid closely, and He is in your laughter and in your tears. We pray for you often, for strength for the journey, peace and hope.

Sheila Duerksen
Wed Feb 28 20:22:48 2007

One moment my heart caves in and the next it pumps up when I read your updates. Turning from anxiety to helpless laughter is often a tiny step, eased onward by the grace of God who gave you guys such a great sense of humor! Following your journey through all of this has been life-giving for us all. Rest assured that you are remembered often in our prayers.

Great Auntie Emma
Wed Feb 28 12:11:44 2007

I was so glad to see some good news! I loved the cake picture on Javid! I shared with your old childhood buddy, Shawn, concerns for Javid. I know he will pray for your family too! God bless you and keep you and give you peace.

Glenda
Wed Feb 28 2:44:32 2007

Great to hear a little good news today. We're sending all sorts of warm, fuzzy thoughts your way. And happy belated birthday, Tony, from your twin cousin-in-law! :) Kris, Pete, Emma, Andrew

Kris
Tue Feb 27 19:47:15 2007

If it's only a small celebration, can it still include gin and tonics? I'm thinking of you guys all the time. (I saw your pictures today at Bryn Mawr too) The St. Chris crew said to pass along positive thoughts, prayers and support for all of you. Come on Javid!

Patti B
Tue Feb 27 18:40:16 2007

i wish there were better words to describe you guys than just amazing and phenomenal!!!! YOU ROCK!!

jilly
Tue Feb 27 14:34:25 2007

Great to hear some positive news today, what an incredibly tough week it's been for the three of you. Here's hoping this marks the beginning of a new trend!

Obie
Tue Feb 27 14:25:17 2007

I'm honored to read your story as it's unfolding...grateful that you've make it possible for us all to walk with you this way... amazed that it's possible to find sparks of humor around the edges....unable to imagine what life is like for you....praying.

Kim Bontrager
Tue Feb 27 9:53:03 2007

Hurrayyyyyyyyyyyyyyyyy!!!! I am happy to hear the ECG came clean. Hang in there. I showed the pictures of Javid for the first time to Tyson yesterday and his comment was "You can see in his eyes how much he wants to live and how strong that baby is" I thought I share this with you guys, Love, Suzette

Suzette
Tue Feb 27 9:10:13 2007

Well, thanks for the little bit of good news today guys. I agree with Nurse Patti that Javid is a strong little guy--he's 1/4th Diener remember (or is that 1/8th?) [this is not to dispute that the Lapps, Yoders, etc are pretty strong stock themselves.] Anyway, some day he may have the best Diener-triumph-over-medical-odds story yet!

Sneeven
Tue Feb 27 9:07:16 2007

Tony, Ana Lisa and Javid, You're all in our prayers each day. I admire your strength and positive thinking. Much love to all of you.

Jennifer
Tue Feb 27 8:46:52 2007

We just want to let you know that we have been upholding you in our prayers during this long stressful time of ups and downs. Even though we haven't written often we have been checking on Javid's progress regularly. May God lift you up and give your strength.

Willard & Mary Swartley
Mon Feb 26 21:50:11 2007

We think of you guys every day--your strength and good humor through everything is truly inspiring. We're sending all the healing power and positive energy we can muster (we've really been concentrating!). We're also sending a big Yeah! on the EEG results, and a belated Happy Birthday to Tony. Stay strong--we're rooting for you. Go Niblet!

Chuck & Dana
Mon Feb 26 21:18:21 2007

I am cheering as requested. I am so touched by all that you guys have been willing to share. Eric and I have you in our thoughts each day. xoxo

Rachel Allender
Mon Feb 26 19:55:21 2007

"It's (NOT) electric! Boogie, woogie, woogie!!" Come on boy!

uncle david
Mon Feb 26 19:21:17 2007

I wish I could be there with Javid and you guys. All I do is think of all of you and just pray. PLEASE... if you need anything- let me know. I will not be back until Wed. night. But I will keep checking for updates. My heart goes out to you. Stay strong and remember that Javid is SO strong. He couldn't have better parents than you!

Patti
Mon Feb 26 14:48:07 2007

Nana Helen sent me the web site today and I've just been reading it, marvelling at the creativity that has gone into it, but mostly marvelling at the love that sparkles right out of it as well as from the letters in the guest book. Javid has been blest already in his young life with so much love, so many prayers to lift him to the Light for healing. I have added mine to those and will continue to do so - for Javid, for Tony and Ana Lisa, and for the doting grandparents on both sides - who I count as my friends.

Audrey Metz
Mon Feb 26 14:09:51 2007

Happy Birthday, Tony! I love you and Ana Lisa and am sending you lots and lots of love and hope. I admire you both so much!

Roberta
Mon Feb 26 12:58:24 2007

Happy belated b-day, Tony! Amy alerted me to your website-- I'm thinking of you all. Please let me know if I can help somehow.

Tami Gerber
Mon Feb 26 11:53:29 2007

Ana Lisa and Tony, I am thinking of you guys. I can't imagine what you guys are going through... Love Suzette

Suzette
Mon Feb 26 11:43:50 2007

Queridos Tony y Ana Lisa, I have you and Javid in my heart at this very difficult time. I am thinking of you. Con carino y amor, Bia

Bia
Mon Feb 26 10:46:38 2007

Happy Birthday Tony... wish it was in a better frame of circumstances that you could celebrate. Know that we are thinking of you all and praying for little Javid. Hang in there little guy! You're dad's a really great (though a little whacky) guy that you gotta get to know! :-) Love ya'll!! Trish

Trish Hoover
Sun Feb 25 22:03:27 2007

People in Texas are thinking about, praying for, and concentrating positive vibes on Javid's well-being. And his dear parents. And Grandparents. And other family and friends. And all the caregivers. Uncle Ron--for Marilyn, Drew, and Jared.

Ron Diener
Sun Feb 25 20:49:47 2007

Happy B-Day to you! Try to have a wonderful birthday!! You guys are the best!

Patti
Sun Feb 25 20:37:05 2007

Happy Birthday, Tony! 39, huh? You're just a young squirt yet! Havin' a youngun' around will either keep you young or make you grow old really fast! Now being a guy you won't really be able to identify with me on this, but the day I found out I was old was the day my 16 year old son told me he was jealous of my chin whiskers! I wanted to cuff him, but he was a head taller than me and I thought it best not to start something I couldn't finish! (With age comes wisdom!) About Javid, Ana Lisa, you're Mom called me this evening just as we were leaving for church and told me about Javid's latest crisis. Shortly after the service started at 7:00 we had a prayer service for him. I have had you all on my mind ever since. How I hurt for you. Whether you feel like this or not, I can see that the two of you together are a tower of strength. Hang in there! We love you all.

Great Aunt Mary
Sun Feb 25 20:22:44 2007

analisa, i love you for words like crapilicious!! forgot to tell you that today. tony i hope your birthday gets less crapilicious as the night goes on. take a deep breath:) i'll see you again soon:):)

jillyjill
Sun Feb 25 19:19:05 2007

HAPPY BIRTHDAY DADDY !!!!

JAVID
Sun Feb 25 14:50:12 2007

Happy Birthday Tony!!! Hope you're not feeling too old these days...although it seems kids are good at making you age more quickly ;-) Even with all you guys are going through, do take the time to celebrate this day. We all know how precious life can be...whether you're 4 months or 39 years. You are all continuely in our thoughts. Love...Michele, Vince, Jacob, Jared & Emma.

Michele
Sun Feb 25 11:53:42 2007

We've been thinking about you all a lot and we're praying for you. We're amazed by Javid's will to live, but even more by his parents' strength.

Julia, Lucas and Doug
Sat Feb 24 19:24:39 2007

You guys are in our thoughts always. We're sending you huge hugs, shoulders to lean on and lots of healing energy to lil javid. We love you guys very much and are amazed at your strength and courage.

Pam, Gregg & Alex
Sat Feb 24 6:57:39 2007

Javid continues to charm me with his photos -- I love the ones posted today. What a sweet, sweet boy with those big eyes. We're thinking of you constantly....

Auntie Bev
Fri Feb 23 22:54:21 2007

We're late signing the guestbook, but we think of you guys every day. Now seems the time to send even more hugs, smiles, warm wishes and positive vibes to you and Javid. We love you guys, and are amazed by your strength, courage and overall wonderfulness. Take good care of yourselves and when you need it, we’re hugging you.

Margaret & Brian
Fri Feb 23 20:54:16 2007

I am holding you three in the light. Ana Lisa, we have missed you at work these last few days. The BDVP is sending you and Javid lots of positive thoughts and prayers.

Susanna
Fri Feb 23 17:36:21 2007

Tony and Ana Lisa, I even begin to imagine the emotions you two must be going through this week. We keep you in our prayers.

Louisa
Fri Feb 23 13:44:06 2007

Hi guys: We've been embroiled in our house project all week and lost track of the status of things with Javid. . .rats. You guys have been to hell and back three times over. We are employing all of our powers of positive thinking on the tyke's behalf, and thinking about you'uns. Love from both of us.

Sneeven
Fri Feb 23 7:59:21 2007

Whatever we're doing, our thoughts keep returning to the three of you, so precious to all of us. We focus on hope, though it's wrapped in such struggle. I have Emily Dickinson's words on my wall, "Hope is the thing with feathers that perches in the soul and sings the tune without the words and never stops at all." We hope and we pray. Much love to you.

Marion and Ellie
Fri Feb 23 7:12:29 2007

I am friends of Jen & Bob Lerch in NY. As an outsider, I can see where Javid gets his strength from - his parents are amazing. Just know that people in NY and my friends in Maryland continue to pray for you and the hospital staff. God bless you all!

Barbara
Fri Feb 23 5:37:40 2007

Always wishing we were nearby and could offer more than words and thoughts. So good to see how many others surround you with care and support. You both and lil' Javid have been near my heart all along but more than ever now. Much love.

Aaron
Thu Feb 22 22:14:09 2007

My heart just aches for you both right now. I'm praying that Javid will just keep on fighting.

Kris
Thu Feb 22 20:45:25 2007

You are on our minds constantly. Hang in there. Javid is a fighter, and he is the luckiest little guy in the world to have you as parents. We are thinking of you and love you to pieces.

Matt, Chan, Addyson, and Aeron
Thu Feb 22 19:43:33 2007

Our hearts go out to you during this scary frustrating time. Have faith in the strength of this wonderful little baby; never lose faith in his ability to fight. He is a very special child and you are very special parents. Curl up in the ball and allow yourself to be weak and scared for the moment; your strength will return if his falters. God Bless.

Dave and Maureen Parker
Thu Feb 22 18:41:09 2007

I prayed to my guardin angel for Javid. I know she will do her best, she always does. My thoughts and prayers go out to your family. Javid is a very lucky little man to have such a loving and caring family. Stay strong. You will be in my prayers

Karen (Nurse Patti's Cousin)
Thu Feb 22 17:49:08 2007

hey guys, just wanted to say that javid as well as you guys are in my prayers. i have been calling the nursery to see how he is doing. be strong and keep positive, he is such a strong little guy! see you on tuesday!

nurse tania
Thu Feb 22 17:08:41 2007

All of my love and light to you. I love him very much.

nicole
Thu Feb 22 15:55:55 2007

Of course we are upset, and we know you are too. I hope you can take care of yourselves at this time, difficult as that may seem.

Mohan
Thu Feb 22 15:01:14 2007

Dear Tony, Ana Lisa and Javid, Your grandparents shared with us the upsetting news. This must terrible for you and yes, sometimes curling in that ball is the only thing you can do. You and your families are in my thoughts and prayers.

Glenda
Thu Feb 22 14:54:54 2007

Javid is beautiful and strong. He has surprised you before with his ability to survive. We are praying this rollercoaster ride slows down so you can just enjoy him. We wish you rest and peace and some laughter too. Know that he senses your immense love for him. We wish we could hug you in person. Lisa and Nick

Lisa Mitchell-Bennett
Thu Feb 22 14:31:41 2007

I guess I always go straight to the update; I never noticed the guestbook until today. The kids and I were looking at Javid's pictures this weekend. That one gorgeous picture with his eyes looking right at us makes us feel like we know him...we are so anxious to meet him. I know this recent setback must be devastating for you. We are thinking of you and praying for you and cheering Javid on every day. We love you!

Sandra Shenk Lapp
Thu Feb 22 14:10:49 2007

Dear Ana Lisa and Tony, I know that you are going through a hard time now and I wish I could do something to take all the pain and worries away from you. YOU ARE IN MY THOUGHTS AND PRAYERS. JAVID HAS SHOWN TO BE A STRONG BABY! DON'T LOOSE HOPE! LOVE, SUZETTE

Suzette
Thu Feb 22 13:59:34 2007

Dear Ana Lisa, Tony and Baby Javid: I have been quietly in the background fervently praying for all you. You are a very strong and loving couple , with many people who love you very much. I am sure Baby Javid senses this and will give the good fight! God Bless you all, and know that you are in my prayers. Warm hugs to all of you. Luz

Luz Marin
Thu Feb 22 12:24:41 2007

Tony Ana Lisa and Javid - with tears in my eyes I'm praying for all of you. This is a hard time. Do hold each other as you curl up in that ball.

Loretta
Thu Feb 22 11:13:32 2007

Rather than remaining silent in the mistaken belief that saying nothing is better than saying the wrong thing, I just want you to know I hope that curling up in a ball works for you. A friend of mine is fond of saying "When in doubt what to do, do nothing at all." And yes, that's the wrong thing to say, but it works sometimes.

Marcia
Thu Feb 22 10:11:51 2007

I just wanted to let you know how much you and Javid are in our thoughts and prayers. Our hearts go out to you.

Kris (Nurse Patti's sister)
Thu Feb 22 10:09:46 2007

Oh my, Tony and Ana Lisa, what a heart-wrenching time for you right now! I am so sorry. Our hearts are hurting and weeping for you and our prayers are storming heaven's gates for you and little Javid. You are loved.

Great Aunt Mary
Thu Feb 22 7:42:08 2007

Dear Tony and Ana Lisa: We have been following the on-line journal, and appreciate the way you have kept all of us so well informed. The February 21 entry weighs heavily on me, and wish for you to know how much you are in my thoughts and prayers. Marvin

Marvin Blickenstaff
Thu Feb 22 6:05:13 2007

You three are in our prayers right now. This must be a disheartening time but the words from a gospel song come to mind.."His eye is on the sparrow,and I know He watches me". He's got little baby Javid in His hands. Stay strong. We love you all! Verton and Cheryl

Cheryl Y.
Wed Feb 21 23:29:55 2007

Hi my friends! I am thinking of the two of you and little Javid a few blocks away and sending lots of love and strength his way. I know you know how much love there is around for you and little man but I just wanted to say it anyway!

valerie
Wed Feb 21 21:52:51 2007

The song "He's got the Whole World In His Hand" is running through my thoughts tonight as I read of your Little Javid. Mostly the verse "He's got the "Teenny Tiny baby" in His Hand". What a comforting message in these difficult hours. Love, Grace & Harvey

Grace Freed
Wed Feb 21 20:41:04 2007

Tony, Ana Lisa & Javid...I don't know what to say about the most recent update, but feel like I need to say something to let you know that we're thinking of you. You're in our prayers. Keep strong. Love and hugs from all of us.

Michele
Wed Feb 21 19:26:19 2007

Nice job on the bed Patti! You make me so proud!

nicole
Wed Feb 21 15:04:27 2007

Hey Tony and Ana Lisa, what great pics! That little boy is getting more handsome by the day! You must be completely exhausted running back and forth from home to work to hospital and then add remodeling into the mix! How DO you manage to keep your sanity?! Yes, there is something to be said for taking one day at a time. You guys make such an awesome Mommy and Daddy! Please know that we are hanging in there with you with our thoughts and prayers. And thanks again for keeping us abreast of this, your wonderful, bewildering, joyful, exhausting, and impressive saga! I suspect that not only is it therapeutic for you, but also for us. It is a daily reminder that our own minor struggles are just that--very insignificant and minor in the face of this delightful and heart-tugging little miracle. As I go back and view some of Javid's newborn snapshots and compare them to the latest pictures, all I can say is that inside that tiny little body resides a giant---a giant will to live, to love and to experience all the goodness that life has to offer. May God continue to bless you all with strength and good humor and wisdom to make the right decisions for Baby Bear.

Great Aunt Mary
Tue Feb 20 23:43:40 2007

Hey guys. I am sure it can be discouraging knowing Javid has been on the vent for so long, but listen to those docs .. they know what they are talking about! All you can do it take it one day at a time .. I know it's cliche and I've been saying it since day one, but it's so true. I also wanted to share with you a story of a little girl that was in the NICU while we were there. She reminds me very much of Javid. She was maybe a 26 or 27-weeker, but always had things growing in her tube and they had the hardest time getting her off of the vent. They also discussed trachs numerous times with the family. Finally one day (and I am not exaggerating, I think she was something like 9 pounds) one of the nurses heard a cough/sneeze and came over to see that she had pulled her tube out and was satting wonderfully. They put her on CPAP for just 24 hours or so to be sure, but she was off for good after that. Just goes to show it will happen when he is ready, on his time. Anyway, wanted to share that there really is hope. Hang in there and know we continue to follow your story daily. You are an inspiration to everyone as you walk down this long path. We promise one day it will lead all three of you home at last! Love, Matt, Chan, Addyson, and Aeron

Chan
Mon Feb 19 19:44:01 2007

It was late in the afternoon when we arrived to see Javid today. Was he asleep? I patted his head and repositioned his nippy. Oops, explosions under the covers! Soon Nurse Karen arrived and kindly made me feel useful telling me as I touched his tiny head, "He really likes having his head patted!" Told me also while changing the poopy diaper that the other day Javid surprised her by holding so tightly onto her finger. I mentioned that Javid is getting cuter all the time and again, total agreement with this unbiased grandma! Thanks Karen for caring so well for this cutie grandson of ours and for asking me to keep on with head pats and yes, please keep the nippy in place - as you went through your diapering, suctioning and feeding routine. He watched us both wide-eyed - I was definitely not ready to leave, but time was up! Breathe easy, Javid dearie.

Nana Lapp
Sat Feb 17 21:54:25 2007

Nice pictures of uncle David holding Javid. He looks like quite a PRO with that special hold! We will be sure to pass good news along to one of your old childhood buddies, Shawn in Mt. Joy, Pa. next weekend. He will be very happy that Javid is growing! Your nurses and drs. sound wonderful! What a gift of people to cheer you on!

Glenda
Sat Feb 17 4:04:18 2007

Javid had a WONDERFUL night. His oxygen requirement was only in the 30's (%). He CO2 was... 56!!!! I wanted to let you know asap because I know you where a little down last night! And of course I know Jill will be looking at this!! Hi Jill I hope you are felling better.

Nurse Patti
Fri Feb 16 4:08:05 2007

Next time off the tube, I'm going to break out my lucky Redskins Super Bowl mug, which has never failed when a clutch field goal is needed, and I think it works when SOMEONE'S oxygen needs a boost too. Anyway, thinking about you guys much as ever. . .frustratingly slow for you I'm sure, but progress is progress. :( :)

Sneeven
Wed Feb 14 22:12:06 2007

We are also rooting for you, Javid! Your parents are among the greatest and we somehow know you'll make it. These pictures and stories they write are such fun to read. It must have been a sort of bad day for them today, but I'll bet you're glad they gave you a break. We are so proud of you. We are so glad you have such great nurses and doctors around you.

Great Auntie Emma
Wed Feb 14 15:44:25 2007

Mmmmmmmmmmmmmm!

happy uncle lappy
Tue Feb 13 18:50:15 2007

That uncle Dave is a cowhand for sure. He looks like he knows what he's doing...and Javid is still in control!!! Hope the progress continuous, Javid!! Keep breathing. We love you! GranPaul & GrAnn (Yoder)

Pau & Ann Yoder
Tue Feb 13 18:25:39 2007

JAVID I KNOW YOU CAN DO IT!KEEP GOING CUTIEEEEEE

suzette
Tue Feb 13 13:59:22 2007

Javid, YOU ARE AWESOME! You broke your own record!!! What'd I tell ya, huh?! Hang in there, J-man. Show 'em what your made of! I love ya, L'il Buddy.

Great Aunt Mary
Mon Feb 12 22:12:55 2007

Javid, I know your grandma and grandpa Yoder. They love you lots. You are in my prayers.

Loretta
Mon Feb 12 11:39:14 2007

GO JAVID! GO JAVID... WHAT CAN I SAY, AMAZING.. I AM SO HAPPY TO HEAR HE IS DOING WELL WITHOUT THE VENTILATOR :)

Suzette
Mon Feb 12 10:10:12 2007

Javid, you are just too cute! With Dr. Seuss as an advocate, you'll go far! Keep listening to him. And, lil' buddy, breathe, breathe, breathe!

Aunt Ellie
Mon Feb 12 9:57:24 2007

Way to go Javid!!! Keep it up!

Patti
Mon Feb 12 8:24:27 2007

Kudos to you, Javid, for making it 36 hours already! You're amazing and we are so proud of you for giving it another go. Yesterday your cousin Greta said, out of the blue, "I think I love Javid even more than my friends."

Auntie Bev
Sun Feb 11 21:15:32 2007

GO JAVID GO! I can't believe that it has been over 4 months... time to get rid of that tube already! I'm sending you a few extra deep breaths to help you along the way (and a few calming ones for your parents). Breathe Javid Breathe!

Sarah
Sun Feb 11 8:40:00 2007

Hey, Tony and Ana Lisa, I just LOVE the new pics! That little boy is SOOOO adorable! I just thought I had to reach into the pictures and cuddle him, but of course, technology hasn't found a way to make that happen just yet! I love the idea of you guys reading books to him on CD. I am such a HUGE fan of reading to children; the earlier, the better, and you guys have a great start on it. For the last number of years I have been reading books on tape for Christmas gifts to the youngsters in my Sunday School class. My little 3-5 year olds just love it. And you have just given me a great idea to do a couple of books for Javid. I already have the books in my loot pile for him. You two make such awesome, fun-loving parents! Javid is a very lucky little boy! Okay, now Javid,let's do it up right, okay, Buddy? You show 'em how it's done! Remember, you're a RECORD BREAKER! (not to mention, a little HEART BREAKER, with those gorgeous peepers flirtin' with everybody!) Love you, J-man!

Great Aunt Mary
Sat Feb 10 22:13:15 2007

C'mon Javid, this is YOUR time! Breathe, buddy, you can do this! We are pulling and rooting as hard as we can here in Ohio. Hang in there, Tony and AnaLisa! We love you! Matt, Chan, Addyson, and Aeron

Chan
Sat Feb 10 19:55:26 2007

p.s. the picture of the clock is just letting you know that he was up at 3 am listening to your lovely voices. now thanks to you- that is what i will be falling asleep to. just kidding!

nurse patti
Sat Feb 10 8:05:05 2007

Tony, check your e-mail. i sent you wonderful pictures of the boy. good luck!!! i am praying for him.

Nurse Patti
Sat Feb 10 8:01:02 2007

Javid. I seriously hope that you are enjoying the pressure to gain weight. Later in life you may look back on this period with some nostalgia. You may not understand such things now, but having my doctor, friends and family tell me that I need to gain a little weight is one of my most cherished dreams. And you are living it, Javid. Congratulations, big boy!

Carrie
Fri Feb 9 18:30:37 2007

We are so please to see Javid's steady growth. God bless you all..

Zachary & Jillian Harris
Fri Feb 9 10:50:34 2007

Had to chime in and wish the little - but growing - one a Happy 4 Months! Glad to hear that things are progressing...even if it's slower than you'd like. You're all in our thoughts and the good vibes are constantly being sent! Love from all of us... Michele, Vince & our rugrats - Jacob, Jared and Emma :-)

Michele
Thu Feb 8 7:13:20 2007

On Sunday Theresa told me you like to be read to, Javid. Did you tell your mommy "Grandma read to me"? Don't tell me you were asleep - I saw you pop open your eyes at least a little bit. Next time I come, I will bring some really good stuff along - Maybe I'll teach you some nursery rhymes - how about Rock a Bye Baby, on a Tree Top - that's a scary one. Well, there's always Little Boy Blue... I thought about bringing a Harry Potter book, but I decided that could wait. Theresa is right - reading is good - your daddy sure thought so! Love you, little tyke! See you again soon.

NanaHelen
Wed Feb 7 21:36:16 2007

For goodness sakes, Javid, are you going to just lay there and take all this ribbing over your "poor little red bum"? It's gotta be bad enough to endure the physical pain without all the embarrassing (and by "embarr-assing" there is no pun intended!) hype about one's keester, although I am quite certain that yours is absolutely adorable! Take it from me,(and I am known to give great advice!) next time one of those cute little nurses come in to change your duds I'd give 'em a squirt where it matters! And about the diaper rash, tell your Mom and Dad to arm themselves with some good ol' Udder Balm. If they can't find it at Walmart tell 'em to take a fast trip to the nearest Vererinarian. It works wonders when slathered on cute little human bottoms too! Seriously, though, your Great Uncle Jim and I are praying for a great day tomorrow with your ex-tubation. We all love you, little darlin'. Breathe, Baby Bear, breathe!

Great Aunt Mary
Sun Feb 4 21:54:16 2007

Sorry to hear about your son and wife's medical condition but remember that with God all things are possible! Continue to trust Him and have faith that if it is his will they will be restored. "Little David," he is able to take you through. Love always Lurline

Lurline Gray
Fri Feb 2 11:09:18 2007

WHAT A GREAT NIGHT JAVID HAD! SEE YOU GUYS ON MONDAY!!!

Patti- Nurse
Fri Feb 2 5:26:50 2007

Dear Javid, How we have prayed for you on this long journey you are on. We have kept up to date through your grandma and grandpa Paul and Ann here in Harrisonburg. Now we are far away in Indiana but are still interested in your progress. Our love to your parents. Ruthann and George Brunk

Ruthann Miller Brunk
Thu Feb 1 16:21:25 2007

Lil Boy, 57 1/2 hours was great! We're sending our best vibes to coax you off the tube again- breathe, dear Javid, breathe!

Aunt Ellie
Thu Feb 1 10:10:53 2007

Go Javid, Go! Breathe, breathe, breathe!

Chan
Wed Jan 31 19:21:28 2007

Keep it up Javid and one of these days you'll find "Goldilocks " sleeping in your bed while mommy & daddy bear have you out for a walk.

Grace
Wed Jan 31 13:24:30 2007

Keep breathing, buddy...your Sudan Fans are rooting for you! Hang in there, AL and Tony.

Obie and Kari
Wed Jan 31 1:38:08 2007

Way to go, Javid! Keep on keepin' on there, Buddy! And I must say, you are quite photogenic already with those gorgeous peepers gazing adoringly into your Mimi and Dawdy's eyes. Bear in mind, though, that your Great Aunt Mary expects to see those peepers too when she finally gets a chance to get her hands on you, you handsome little puppy! I can't wait to see you. I never knew Michigan could feel so far away from Philly! Hurry up and get all better so you can go home with your Mom and Dad so we can have a shower for you. Great Aunt Mary has got all kinds of loot just waitin' for you! Breathe, J-man, breathe!

Great Aunt Mary
Tue Jan 30 23:51:54 2007

More positive vibes coming your way.............. We are all rooting for Javid!

Nurse Patti
Tue Jan 30 23:44:45 2007

Hey, Javid!! Just keep breathing on your own and you won't get that nasty tube down your throat again. We're root'in for you from here in the 'burg. Will work very hard for a chance to cuddle you... Eat your heart out, Grunkel Dave. GranPaul or Yoder Dawdy, whatever...

Granpaul Yoder
Tue Jan 30 13:34:59 2007

Thanks for sending us the link to the website. I am so excited that I get to see Javid from this far away. He definitely has his dad's hair!

LaRee
Mon Jan 29 22:28:29 2007

So it doesn't take a genious to see what Javid and his parents are pulling here. Those pics of paul and ann are a dead give-a-way. He should be ashamed of himself, selling cuddle time in exchange for housework! Okay, I'll bite. What does an uncle gotta do to hold the tubeless one?

Grunkle David
Mon Jan 29 21:51:29 2007

I remember the feelings we had when Aeron was extubated and didn't make it the first time. Disheartening to say the least. Javid made it longer than Aeron did the first time .. he's a strong boy! We are sending positive-breathing-on-his-own vibes as fast and hard as we can get them there! You can do it Javid! Be strong, buddy! Hang in there AnaLisa and Tony, you will look back on these days a year from now and wonder where the heck the time went. Love, Matt, Chan, Addyson, and Aeron

Chan for MCAA
Mon Jan 29 19:28:23 2007

You know, Javid, you remind me so much of myself when I was growing up (FYI: I haven't stopped growing). Difference is I managed to blow the tube right back into everyone's lap (and into my mother's cup of soup, Yuk!) So, if I turned out this perfect fine, so will you. Trust me!...no, seriously, trust me. And now, directly from North Philadelphia (drumroll please) Brrrrrrrrrrrr...the best vibes ever, just for you!...Hey, how's you like those vibes, hah? Want more, you said? Well, here....Brrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!....

Roberto
Mon Jan 29 12:55:05 2007

I am sending positive vibes... and I personally gave Javid a "pep talk" about breathing on his own like a big boy. My fingers are crossed. See you guys on Wednesday night. Jill, I will call for an update :)

Nurse Patti
Sun Jan 28 22:04:58 2007

i think i call for javid updates on my days off as much as you do!! i just talked to patty and i'm so glad he had a great day:) i will see you, hopefully, tomorrow and i hope you're both feeling GGGGRRRRREAT!! oh by the way, you have such awesome families:) it was great to spend time with the g-parents saturday:)

nurse jilly jill:)
Sun Jan 28 19:08:26 2007

I couldn't wait to log on today-hoping for pics of Javid with Mimi and Dawdy Yoder-and there they were, the three of them bonding and visiting together! I don't know what vibes and words they were sharing, but I know they were special, whatever they were. Javid is wrapped tightly in a blanket of love by all his grandparents- and so many others of us. Seeing his beautiful eyes focusing (in recent pics) on those holding him is super neat- what a precious, handsome great-nephew he is! And Mom and Dad, you be gentle with yourselves right now so you can regain energy and feel better very soon. We love you all!

Aunt Ellie
Sun Jan 28 11:38:45 2007

Tony and Ana Lisa -- Thank you so much for keeping us up to date on precious little Javid. The pictures are wonderful and the updates give us a window into the roller coaster you have been riding these past months! We keep you in our thoughts and prayers as you continue on this journey.

Louisa Oyer
Sat Jan 27 22:38:08 2007

Hi all. We've been following Javid's progress and can sympathize with your frustration regarding failed extubations. It is very familiar territory to us with what our son Trent went through. We offer our prayers and support to you, but also would like to offer you the opportunity to come spend some time with Trent in our home to get a sense for what it's like to have a baby with a tracheostomy. We sincerely hope that Javid is successfully extubated, but should you be faced with having to make a decision about traching him, it may be helpful to understand the implications. We often wish that we had had such a chance in that it probably would have made the decision a little easier to make...maybe not...not sure. Regardless, the reality of it all is hard to imagine without actually experiencing it first hand. There are many benefits that weigh against the inherent challenges of a tracheostomy, so if you think this would be at all helpful to you, please don't hesitate to contact us at mlsmith27@comcast.net or dpark669@aol.com. Continued strength and patience to your whole family...it's a long road with many highs and lows. Dave and Maureen

Dave and Maureen Parker
Thu Jan 25 16:09:59 2007

Yayyyyyyyy i am sooo happy to hear he sn´t need surgery yayyyyyyyyy. Happy due date Javid. YOU ARE AMAZING! AND YOUR PARENTS TOO :)

Suzette
Wed Jan 24 12:35:25 2007

that means you too tony!! your day will come:)

jill
Wed Jan 24 11:44:36 2007

i know i just saw your kid yesterday, but i really miss lil stinky pants:( and i must say i'm glad that now there's proof - he poops for those he loves:):)

nursejill:)
Wed Jan 24 11:38:35 2007

And on this "alternative universe due date" - what does Javid weigh and how many inches is the fellow? I love being able to see his eyes on the picture... in Bolivia they used to tell us that there is a stage when a baby turns from an infant into an "entendido" (understanding). It's that moment when a baby looks back at you with wide eyes and "knows who you are". At about three/four months. The way his eyes look on this picture, it sure seems like he might be getting there...

Marcia
Wed Jan 24 5:34:59 2007

Hey, this brain stuff.... just remember the science on the brain is changing what we know faster than we can think it (o.k., that's more true for casual observers of the science who aren't thinking very fast like me than for the scientists).. One of the latest things is "WoW, the brain has plasticity, it regenerates itself, it fills in the gaps, it recovers..." So don't take any "categorical thinking" (which means thinking about the body like a car with replaceable parts that wear out) too seriously. There is amazing resiliency in the human body, and for goodness sake... if anyone is getting early practice in resiliency, this little tyke is being trained well. And he's training you - bet you are better at roller coasters than you were a year ago... Just think, when you are old and creaky and this little tyke is going to be out-thinking you, out-moving you, and telling you what he thinks you should do.... he'll smirk to himself that Mama and Papa Bear just really never got rollar coasters, but HIS generation now... he and his friends will probably all agree that THEY are the exception to the generational process, and THEY are the peak of the human art form. ;-)

Marcia
Wed Jan 24 5:30:19 2007

Tony and Ana Lisa, I heard about Jahvid's birth through my brother, but only found your website today. It's wonderful to see pictures and read updates on this little one who's been in our thoughts and prayers! Happy Due Date, dear Jahvid! What a milestone! -Analisa

Analisa (Massanari) Ficklin
Wed Jan 24 0:45:36 2007

WHAT GREAT NEWS!!!! STAY POSITIVE! SEE YOU GUYS ON WEDNESDAY NIGHT!! IF ALL GOES WELL AND YOU GUYS CAN MAKE IT IN- MAYBE YOU CAN DO THE BATH--A GOOD ONE ;)

Nurse Patti
Tue Jan 23 21:43:01 2007

Happy due date day Javid! He's getting so big! I need to come visit again too! (I just read Suzette's message) Hope you three are all doing well! Talk to you soon. Love, Glenna

Glenna
Tue Jan 23 18:03:23 2007

Hi guys, Javid looks so cute! He is defintely growing. I know that you are feeling you are riding a roller coaster but just remmber that you need to hang in there and wait until the ride is over. I am in Colombia but I am thinking of all of you. I know things will only get better. Stay positive! I am looking forward to go back to USA so i coul go vist Javid. Stay strong! Javid has come a long way, ust imagine how it will be 100 days from now, he will be better! Love Suzette

Suzette
Tue Jan 23 12:16:19 2007

Hey guys: Hang in there. Bernie (and all of us up here) can relate to the dismay of watching that tube go back in. But good things do happen in the long haul--Bernie just went out to a restaurant w/ us the other night for the 1st time in 2 years, while carrying a mini-respirator that you hardly notice--and his O2 is great--seems like he's gotten 3 years younger. I don't know what all that means, but good things do happen long term even when the short term looks not so good. Thinking about yous. Sneeven

Sneeven
Mon Jan 22 11:44:25 2007

Hey Tony and Ana Lisa, thanks so much for taking the time to keep the updates coming. It is a fun and creative way to keep everyone abreast of the latest in this precious baby's young life. I am so sorry you guys have had to endure the roller coaster thing. It sorta keeps your stomachs in knots, I know. About the size of Javid's brain, while it is easy for me to sit here in MI and tell you not to worry, I know that for you, Mama and Papa Bear it is much more difficult to carry that out. I will tell you this, and maybe this doesn't mean much, I don't know, but I just sense in my spirit that Javid is going to be just fine developmentally. It will likely be slow going at first given the setbacks he's had, but after that, the older he gets the more accelerated the development will be. I do know this, that with two great parents like you, this little boy will be given every opportunity possible to be all that he can be and then some. How blessed he is to have been born into your family! Know this, too, that God specializes in miracles! We see proof of that right here on your web page. Our love and prayers are continuing your way. Thanks for including us in your lives like this. You are loved.

Great Aunt Mary
Sun Jan 21 22:39:57 2007

Hi Papa, Mama, and Baby Bear....sorry to hear that the tube went back in on Thursday (where have I been? I just kept looking at the great photos from Wednesday without realizing there was another update until tonight). Javid has been amazing through all this, as have you. We're eager for every bit of news along the way but loving the "long view" glimpse given with those photos from Wednesday. And I loved his wardrobe choice for such a big moment. :)

Auntie Bev
Sat Jan 20 21:46:01 2007

What a beautiful baby you two made. I'm sending him (and you both) lots of love and good wishes. And maybe, if i'm not infected with a lot of Oliver cooties, a visit next week? I'm feeling a hankering for some newborn toes.

Carrie
Fri Jan 19 16:54:29 2007

100 days since birth! Great news and neat pictures! It is so nice to see him close up, he looks big! And such good support from so many family and friends--that helps, along with your humor! You three have come a long way together-- God bless you!

Glenda
Fri Jan 19 0:02:18 2007

Congratulations, Javid!!! How awesome is that?! And I love your shirt! I have a sneaking suspicion that you and your Dad are going to make quite a pair! Ana Lisa, you'd better look out! By the time Javid is old enough to talk, between those two kids (the little one and the BIG one) you're gonna be kept in stiches (the mirthful kind) continuously! For goodness sakes, the child is a spittin' image of his Daddy! I don't know if the whole of Philly will be able to handle the likes of those two! Also, I grimaced too, at the mention of the little guy's sucking ability. I have vivd memories of those days! The first couple of times it's enough to make your fingers want to curl right up! Happily, one does get used to it and then it becomes such a joy. Good grief! Did you ever dream your Aunt Mary would be discussing breast feeding in such a public forum?! Love you guys!

Great Aunt Mary
Thu Jan 18 22:17:52 2007

What an awesome step!! We are pulling and tugging with all our might to keep that tube away. We will be thinking of you constantly. Stay strong, Javid! Not that you weren't cute before, but you are absolutely adorable without that big honkin' thing sticking out of your mouth. If nothing else, keep up the good breathing for the looks! Here's to you and your family and staying off the vent for good. Good luck with the eye exams .. good news is if he needs the laser surgery, you won't have to go through many more of those horrid exams. We love you to pieces. Matt, Chan, Aeron, and Addyson

Chan
Thu Jan 18 16:30:36 2007

Yeah! Go Javid....no more tube! That is great! Congratulations :) The pics look great and Javid is HUGE...not in the fluid overloaded sense like before, but in the healthy, happy, and well-nourished sense! Very cool, congrats!

Mario Cruz
Thu Jan 18 15:20:25 2007

Wow...wonderful news to hear that little Javid is off of the breathing tube! Hard to believe it's been 100 days. Sending lots of good vibes your way from the Wooster-based Yoders:-) Keep it up Javid!!

Michele & the gang :-)
Thu Jan 18 6:53:02 2007

Children are truly a miracle! I am so happy for you two. The fighting he is going through now will make him a fighter as he gets older. I wish you three the best and remember to keep each other in mind as you both go through this period of your life together. He has changed so much since October. Thank you for allowing me to explore your web site and share in your joy!

Joe Catanzaro
Wed Jan 17 13:41:44 2007

Yesterday we stopped to see Baby Javid and yes! You were in the middle of setting up for Kangaroo Care, Ana Lisa! Thanks for letting us in on this amazing scene - Javid obviously loves it - even sucked energetically on his binky as I watched and opened his eyes - before dozing off again. While there Sam was surprised when a student from Christopher Dock High School came up to him and said, "Hi, Mr. Lapp!" Lionel Utah knows Sam as a substitute teacher at CD and was there at PA Hospital job-shadowing (a senior class requirement at CD) with his mom, Dr. Utah, who is on staff there - Lionel too is planning a future as a doctor. He had already noted that a preemie there named Javid had "Lapp" as part of his name. Small world? By the way, I love telling folks about Kangaroo Care - and now we have witnessed the satisfying scene - Mommy holding Javid Fynn dozing snug as a bug in rug - or does that image fit better when Dad gets to hold you close! Love you all.

Nana Lapp
Sun Jan 14 21:17:06 2007

Hi Tony and Ana Lisa. Tony, you may not remember me, but we met briefly in Cusco this summer. I was one of the SSTers. Anyhow, I hope that Javid continues to grow stronger each day. He's beautiful.

Christy Miller
Sun Jan 14 20:10:53 2007

Hi Javid! Aunty Val and Patricia took time off from work this afternoon to check in on you! Much better than pushing papers around here :-)

valerie
Thu Jan 11 15:05:09 2007

Goodness, I have you all bookmarked in the "first upper left tabs" (ie: Most Important). Now... what does THAT mean!! The little video of him sucking his fingers is WAY too short.... and so infinitely precious. Thanks so so much for this way of keeping up with this little one and you both....

Marcia
Tue Jan 9 22:28:18 2007

Tony & Ana Lisa, we must've played the last video a dozen times in the last two days...it is just priceless to see Javid looking around, expressing himself with those "talking" hands and to hear both your voices crooning over him. Made us wanna dance and sing. And the subtitles to the pics are catch-ya-off-guard hilarious. Such a treasured and on-going documentation of your journey with Javid. If Love is rain, and faith is Sunshine, he'll become the tallest oak in the forest! (enouraging words sent to us after Javid's birth by friends at Harrisonburg's Downtown Renaissance office.)Bravo to a beautiful babe and his amazing parents.

Javid's Gramma "Mimi" Yoder
Tue Jan 9 17:48:14 2007

Hey guys. I just wanted to drop by to say hello and tell you guys how much I miss your little one. He looks soooo good! I cannot wait to see him! I hope everyone had a nice holiday. Hopefully I will see you Thursday night.

Patti - Pennsy Nurse
Mon Jan 8 19:34:46 2007

Truly enjoyed watching Javid grow! Brenda

Brenda Rich
Mon Jan 8 19:07:30 2007

Hey, Tony, Ana Lisa, and baby Javid, we have finally been able to log on here. We've had major computer problems but all is fixed and working well now. I just LOVE your web page and what you've done with it! What a great way to preserve history for the little guy and yourselves, no less. Whew! You have been on an incredible journey, or should we say, roller coaster ride! I have been passing on to our church congregation any updates from Javid's Gramma Yoder. You are all in our prayers and I hope you have a wonderful year ahead of you. I can't wait to see the little guy. Tony, you are SUCH a HOOT! All my love, Great Aunt Mary Sutter

Great Aunt Mary Sutter
Sun Jan 7 19:01:46 2007

Dear Javid Fynn, May 2007 be filled with healing and health, happiness and more hilarious moments with your loving parents. Here's a collection of several Catholic prayers for your family: "Go before us, to show us the way; behind us, to be our friend; above us, to watch over us; beneath us, to uplift us; and within us, to give us peace." Love and prayers, Joe,Hannah, Johanna, Kourtnee & Kelsee

Hannah Lapp
Fri Jan 5 9:22:36 2007

oh the pinkness....

Carlon
Thu Jan 4 17:58:56 2007

Today I caught up again with your website. You guys are something else- and I mean that in a very positive way, I promise!:) The pics of you both doing Kangaroo Care with the niblit (love that nickname!)are adorable. (And, yeh, he is so brave to have his soft little head on the shag carpet.) Javid just curls himself around our hearts, I tell you. I want to see your wonderful little family again soon!

Aunt Ellie
Thu Jan 4 13:35:24 2007

I agree with Tonio about pseudomonas. I hate its guts. In the words of Bart Simpson, it can eat my shorts. Go Javid!

Sneevan
Wed Jan 3 17:31:45 2007

THANK YOU:):)

nurse jill
Wed Jan 3 8:29:40 2007

Tony and Ana Lisa, we just arrived home after a long day of driving and of course the first thing I did was check Javid's website (well, after dropping the girls in their beds....easy bedtime tonight!) Sorry to hear about the infection not going away and we hope the new antibiotic is effective. We share your feelings about pseudomonas. And agree with Sneevan (is that you, Steve Yoder?) that Javid's nurses and all those involved in his care deserve big raises! Thanks for all you are doing.

Auntie Bev
Tue Jan 2 23:08:24 2007

hey i have a new idea... i think instead of patti and i working everyday and night, you should plan all your online updates for days that i'm off so i can CONSTANTLY know what's going on with the nibblet. you know like whether he's still lit or if i can bring lots of clothes to dress him up in!!! and whoever sneeven is... i agree:):)

nurse jill
Tue Jan 2 18:30:28 2007

Happy New Year, Javid and Javid's parents. It is Aunty Walerie wishing you all good things for 2007!

Walerie
Tue Jan 2 16:00:44 2007

Thought for the day: Whatever the salaries of Nurses Patty, Nicole, Jill, and their colleagues, it ain't enough. (Corollary: Whatever Shaquille O'Neill's salary, it's too much.)

Sneeven
Tue Jan 2 12:34:43 2007

Wowee kids, kangaroo care; that can only mean good things(?). So happy for you, and the boy even has clothes on! We're thinking about you guys up here on the compound, and talking about you behind your back. Positive Mental Energy (PME) coming your and the boy's way right . . . now!

Sneven
Tue Jan 2 12:11:08 2007

Congratulations to you all! It is exciting to see your precious little one. May you continue to know God's strength and peace in the midst of it all....hugs to all!

wendy kennel
Mon Jan 1 20:31:46 2007

HAPPY NEW YEAR, Javid and parents. What an incredible miracle. I have been very negligent about viewing the pics, but am thrilled to see all you have on this webpage. May each day bring more joys and thrills. In about 16 years from now, when Javid is dunking that basketball, we will all look back on these days with incredible amazement! Hang in there, and keep on lovin' that little guy. "Gruncle" Ron sends his love too. Love, Great Aunt "Graunt" Ruth

"Graunt" Ruth L. Guengerich
Mon Jan 1 13:54:06 2007

I was happy to have Edwin (David's son and Javid's cousin) in our church nursery today. Maybe next year when you visit your parents in Lansdale I'll have the privilege of caring for Javid while you both enjoy the service. Happy 2007!!!

Grace & Harvey
Sun Dec 31 20:34:06 2006

Oh my goodness you guys .. he is looking so good! I can remember this time with our kiddos .. the time when you can say he looks like a little person! He is getting there, you can just tell by the pictures that he is getting there. He's getting bigger and stronger and before you know it he will be off that vent and drinking bottles. I would be a fighther too knowing I had two wonderful parents like you waiting for me and loving me every single day. The love and devotion you have for him just shines in the pics, this website, and your stories. We think about you and pray every day that his journey stays positive, he keeps progressing and that one day soon he will be home. Hang in there. We love you. Matt, Chan, Aeron, and Addyson

Chantel
Sun Dec 31 11:15:32 2006

It must have been wonderful to have some kangaroo care again after quite a long time! I hope Tony got a turn too. It must have also been nice to see Bev and Dale and their family. I know it must have been exciting for them to see the newest tiny member of the Yoder Lapp family. And yes, he seems to resemble his daddy, Tony, quite a bit from what I can see in the pictures. Thanks for your updates, pictures, quotes, distractions and the humor too.

Glenda
Sat Dec 30 0:49:15 2006

We're keeping that little guy in our thoughts and prayers Ana Lisa and Tony. We so enjoy the pictures, updates and humor on your site. Javid will be home before you know it (though I'm sure you feel like he's been in that little bed for a very long time). And goodness, he sure does look like his daddy! Baby steps...keep growing and get healthy in 2007 Javid, dear boy! We're all rooting for you! With love, Verton and Cheryl

Cheryl Yoder
Thu Dec 28 8:24:12 2006

"The only thing that is constant is change." All my good vibes and reiki love is always being sent to the three of you. He is amazing !

nicole
Wed Dec 27 22:37:07 2006

I KNEW it! Thanks for letting us know, Michelle...may the rest of your holiday be doodie-free!

Ana Lisa
Sun Dec 24 21:24:45 2006

Why do I always get all the poop? You were right Mom, Javid did have a nice big load of Christmas poop in his pants! Merry, Merry!

Michelle
Sun Dec 24 17:44:53 2006

That last profile there looks positively Lappish. It's good Tony, that you have no hair so we can make comparisons... I don't know how you keep all the humor flowing, but Jahvid's deprogramming will certainly be an enriching, enlightening and mood-enhancing process...... on a side note about the "deprogramming", did you know that children who go through trauma, and have no nurturing, consistent adult by them have deep trouble recovering, BUT children who go through the same kinds of trauma but have at least one, consistent loving and nurturing adult (doesn't HAVE to be the parent) don't experience as much longterm effects? That's what I thought of reading your comments about "de-programming" from all this survivor stuff goin on.... He's got TWO consistent, nurturing, loving adults (and many more behind them). Stopping in here everyonce in awhile is a lesson in courage itself.

Marcia
Thu Dec 21 14:08:33 2006

Hello, I am one of Mr. Dave's students at Friere Charter School. He has told his class of Javid's mishap and has kept us up to date. I have him in my prayers and am Praying for the best outcome. -Maurice R.

Maurice Roberts
Wed Dec 20 11:29:55 2006

Thanks for letting us all be part of your journey like this . . . what a wonder life is!

April Longenecker
Wed Dec 20 1:02:03 2006

Hi there, I am just discovering your guestbook. You all are amazing to keep such a sense of humor about yourselves, to be so aware of how Javid is a real person underneath all those tubes. He is looking more and more like Tony all the time. Love to you all as you keep parenting him with so much love and compassion. Cousin Cindy in Mt.Rainier, MD

Cindy Lapp
Tue Dec 19 20:37:17 2006

Congratulations to you all! Wow, we are keeping up a vigilant prayer for you Javid, Tony and Ana Lisa. We both are glad God gave you this beautiful gift. Our quiet times often bring you to our minds and we pray for you often. We know our God will be there no matter what and we are so glad you are part of our family. Now this is for Javid, "Welcome to the wonderful, crazy Longenecker Family! You will be a good addition, just hope you can keep your hair longer than your Dad and that you have a fun disposition like your Mom. Hang in there little guy and keep growing strong. We can't wait to meet you. Maybe next summer we will get the chance." Lots of love all the way from Puebla Mexico, Cousin Erica and Joey

Joel and Erica Smith
Sun Dec 17 20:29:59 2006

Every day I'm eager to check the website for updates. You guys are tremendous about keeping all of us informed. I just want to cuddle precious little Javid, and since I can't do that, I cuddle him in my heart. Friends regularly ask about him and say they are remembering him and you, Ana Lisa and Tony, and I know that same thing is going on everywhere people know about him-it's amazing!

Aunt Ellie
Sat Dec 16 12:45:49 2006

Dear Javid, I hope I will see you when I go to Pennsylvania but we will have to see if I'm allowed. I am going to give you a present for Christmas. I am your oldest cousin Greta. Love, Greta

Greta Lapp Klassen
Fri Dec 15 16:26:20 2006

Dear Javid, Please be healthy. I hope you'll get a present baby reindeer that is for babies. And please be healthy. I want to play with you someday. Love, your cousin Naomi.

Naomi Lapp Klassen
Fri Dec 15 16:23:21 2006

Thanks again, everyone for your great comments! This guestbook keeps us going. And to all the Pennsy Nurses--Javid can't wait to see you later today! Thanks for writing in!

Ana Lisa
Thu Dec 14 7:10:56 2006

I was the midwife on-duty the night that you came into Pennsylvania Hospital. I am so happy to see that Javid is doing so well after the surgery. You have all been in my prayers daily ever since Javid was born. With much love, Kim

Kim Trout
Wed Dec 13 19:35:48 2006

So glad to hear that Javid's surgery went well and that he's eating (even if only in little drops). He looks great (and y'all do too, by the way). We have been avidly following his progress and hope he continues to get stronger. AND we hope that you guys maintain the strength you've got. Folks in NC are thinking of you!

Rebecca & Eric
Tue Dec 12 15:38:41 2006

Hey guys, thought I would say HI! It was nice to see you dad the other day, it was nice to hear from you that he was doing much better and the pictures show it too! I can't wait to have him back here, I hope it's soon! We miss him very much!

Tania Pennsy Nurse
Tue Dec 12 10:05:00 2006

Thank you for the neat pictures of your now 2 month old, Javid, and photos of both of you in them as well. I also love the words attached to the pictures. You are in my thoughts often.

Glenda
Mon Dec 11 15:42:16 2006

Wonderful update and precious photos!! We check the website often and send our love and prayers your way every day.

Aunt Gloria & Uncle Gene
Mon Dec 11 8:46:15 2006

Just wanted to let you know that you have a clan of 6 out here in Iowa routing for you all and praying for strength and endurance.

Emily Swartley
Sun Dec 10 21:53:12 2006

I'm so proud and thankful for all of you there in Philly-land as you continue to care for and visit Javid. We look forward to seeing him in a few weeks. The news continues to be so encouraging, especially the return to breast milk -- what a great way to end the week. May the third time be the charm, indeed. We love you and can't wait to see you soon.

Auntie Bev
Sat Dec 9 21:27:55 2006

Tony & Ana Lisa-With a daddy & mommy to cheer little Javid on he'll have no trouble fighting his way to the finish. Tell him we're all on the sideline cheering him on.

Grace & Harvey
Sat Dec 9 20:18:49 2006

We at Plains Mennonite Church, our Women's Prayer Group, and we as a family have been thoroughly enjoying your website for Javid. It helps us understand how another premie experiences life. Our son, David, his wife, Maureen, and baby Trent have helped us all know a lot about their journey since Trent was born three months early at home in West Chester, PA last spring. With his wrist able to go through his father's wedding ring, Trent is now about 12 pounds, almost 8 months, is at home, and has had 12,000 hits to his website, www.caringbridge.org.since Dave and Maureen started it. What a wonderful way to build community and support! We love your redemptive humor! Marcia and John Parker

Marcia and John Parker <drjohnhp@msn.com>
Lansdale, PASat Dec 9 7:39:27 2006

I just wanted to let you know Tony and Ana Lisa that I am enjoying checking this website. It is almost like reading a novel, but it moves too slow! We keep praying that Javid will soon be a healthy thriving growing baby. Best wishes to all three of you!

Great Aunt Mary Swartley
Thu Dec 7 18:14:45 2006

I JUST WANTED TO DROP BY AND SAY HELLO. EVERYONE HERE IS ASKING HOW HE IS DOING. JAVID IS IN MY THOUGHTS AND PRAYERS. I HOPE HE WILL BE BACK WITH US SOON... I MISS HIM TERRIBLY. TAKE CARE AND GIVE HIM A LITTLE KISS FOR ME... HIS FAVORITE PRIMARY NURSE ;)

PATTI- RN AT PENNSY
Wed Dec 6 21:22:13 2006

Hi there, Tony and Ana Lisa - it sure felt good to have that tiny little hand wrapped around my pinkie and to hear the physician's assistant say, "I really love this little guy" and then add what wonderful parents you are - I too am proud of the way you have been handling this most unusual birth - I promise to tell Javid! Keep growing! Love, Dad L

Sam, Dad Pop Pop Lapp
Wed Dec 6 21:18:58 2006

Oh my God, you guys have too much time on your hands, and I think there were too many drugs in your past. (???) But this is one of the coolest blogs I have ever seen for a preemie. Javid is one lucky guy. We miss him here at Pennsy. By the way, I am the nurse who got to break the good news to you that morning that Javid had finally passed a nice, big, poop! Hope to see you all back here soon! Michelle Sohlich-Miller

Michelle Sohlich - Miller
Wed Dec 6 8:37:27 2006

Tony and Ana Lisa, We just wanted to say that we have been thinking about you and little Javid. Zach and Malia keep wondering who I keep praying about over evening supper so the site has been helpful in that regard as well as keeping us up with Javid's progress. My hope is that some day you will visit grandma and grandpa Yoder in Harrisonburg and we'll come by and meet him in person! Blessings, Jennifer for Kendal, Zach and Malia

Jennifer North Bauman
Mon Dec 4 9:24:06 2006

After not cheking in for a few weeks, Javid looks so BIG! I'm so happy to hear his surgery went well...I'll be anxious to see more pictures of you guys with babe in arms. You are never far from my thoughts. Renee

Renee, Derek, and Drew Warnick
Sun Dec 3 15:36:34 2006

Hello to your beautiful family of three. Just wanted to let you know we are still constantly thinking of you and sending all good thoughts and vibes your way. Madame Pumpalump sure looks familiar. Sure miss the ol' broad. Okay, not really, but love the poem! Keep your wonderful attitudes and know you are in our hearts always. And remember, we are always here if you need an ear. Love you all! One day at a time..

Matt, Chantel, Addyson, and Aeron
Fri Dec 1 20:58:10 2006

Glad to hear that Javid's surgery went well on Wednesday. Thanks for the updates on the web page - We think of you often!

Rod, Tisa, Jordan & Sophia
Fri Dec 1 12:21:03 2006

i have to say i didn't quite expect javid's website to be so funny! i am elated to hear that the surgery went well. wouldn't you know our computer went out the day we got back into town, so we went out and bought one, i set it up and looked to see how was baby javid!! i really miss the little puff daddy!!:) it's so great to see that y'all have such a great understanding of what's going on every day (and it makes me a little nervous to open my mouth around you again, you remember quotes and everything!!!) i had no idea you got the chance to meet little amber that day. it was encouraging for me to see her, i can only imagine! don't get too comfortable over there. i can make a pretty welcome back sign!! my prayers are absolutely with you and the javid man. see you soon jill:)

nurse jill
Thu Nov 30 19:35:47 2006

Hey you all, we are thinking and praying for you all the time. Javid is strong, cute, and a brave little boy. Tony and AnaLisa, your faith, self-awareness, and strength is inspiring...Hang in there and don't expect too much of yourselves...you are human, in case you forgot. Take care, Love and prayers, LaVonne ps I look at your updates alot, thanks for them

LaVonne, Mike, Joel and Karina
Thu Nov 30 15:56:07 2006

Your online record is a treasure- and this is a terrific way for all of us to add our love and support. (We think about and pray for the three of you lots-and hug you close-and we have so many friends who continue to ask about Javid on a regular basis. Yea for the successful surgery yesterday, tough little guy and your medical team! By the way, you have amazing parents, but you already know that!Bet you can't wait for your next session of Kangaroo-care! We love you three lots! Maion and Ellie

Marion and Ellie
Thu Nov 30 6:59:40 2006

Congrats to little Javid for being so tough through the surgery. We're thinking of you often. Keep growing!

Michele & the gang :-)
Thu Nov 30 6:21:04 2006

Just reporting in - we visited Javid this afternoon - met Nurse Karen while she was doing some stuff to Javid. He threw up his hand and almost waked up and winked a quick "hi" but then back to slumberland - Nurse reminded me sleeping is good! Love that little one more every time we see him - and of course told him so. The Market St. E. Septa station was crowded filling four cars en route home. In the crush, we met Luis and Sharla and Emily Padilla -they had come to the city to see Egyptian exhibit at U of P. museum - had not yet learned of Baby Javid's "wild ride" into this world. Praying for strength for the day for you all, Nana & PopPop

Pop Pop & Nana Lapp
Sat Nov 25 20:56:15 2006

I pray for you and check Javid's progress daily. The Lord brought this hymn to mind to share with you. May you find Jesus Christ--and Him alone--to be your firm foundation! (vs. 1) My hope is built on nothing less than Jesus' blood and righteousness; I dare not trust the sweetest frame, but wholly lean on Jesus' name. (vs. 2) When darkness seems to veil His face, I rest on His unchanging grace; in every high and stormy gale, my anchor holds within the vail. (vs. 3) His oath, His covenant, and blood, support me in the whelming flood; when all around my heart gives way, He then is all my hope and stay. (vs. 4) When He shall come with trumpet sound, o may I then in Him be found; clad in His righteousness alone, faultless to stand before the throne. (chorus) On Christ, the solid rock, I stand; all other ground is sinking sand, all other ground is sinking sand.

Sherri Hughes
Sat Nov 25 18:31:15 2006

We have been praying for the 3 of you and following Javid's progress. We are thrilled he is doing so well! We are reliving what you are doing through as we did with Michael and Brian. Have faith- 11 years later we can hardly believe it happened. Technology is even more advanced now than what our boys received.It is amazing how many people have premature children and how wonderful the outcomes are. You remain in our thoughts and prayers. Love, Jack and Maureen

Jack and Maureen Gallagher
Fri Nov 24 11:16:49 2006

Kanga and Roo...what a beautiful connection and sensory contact between you and Javid...and the documented health benefits will manifest in time. Way to go--to everyone on the Neonatal team--from housekeepers to parents to nurses, doctors, and lactation consultants. We humans have much to learn from the marsupials? (kangaroo care). Thank God for our human intellectual and willingness to observe and learn about nurture and development from all creatures!! Joanna S. Imperial and family

Joanna S. Imperial
Thu Nov 23 10:59:16 2006

Hey Tony and Ana Lisa--Aunt Bev sent me the link to Javid's site. Great to see you holding him!! We're all thinking of you often, wishing you only good things. Hang in there and hang on in general; parenting is quite the ride! Congratulations on your beautiful wee one.

Cheryl Peachey Stoner
Wed Nov 22 20:41:24 2006

Hi Ana Lisa, Tony and hello to you to Javid...give me time to come up with a suitable pet name for you..keep growing and getting cuter...Tony and Ana Lisa time to invest in some new running shoes...you're gonna need them!!! Love ya...stay encouraged

Darlene
Wed Nov 22 18:56:39 2006

Hi Ana Lisa, Tony and baby Javidcito! Just wanted to say that I love you guys and that I'm both praying and sending numerous good vibes your way. Hope you're all doing well. See you soon!

Glenna
Tue Nov 21 22:03:22 2006

I have read and heard that kangaroo care and mother's milk are the greatest for tiny, tiny babies. Such nice pictures too!

Glenda
Tue Nov 21 17:22:43 2006

I was a small baby too. I was in the hospital for a long time but now I'm big and healthy and smart. I think your baby will be big and healthy and smart one day too Tony.

Richard
Sun Nov 19 18:10:02 2006

Hello to Javid's parents: Mert Brubaker is a friend of mine, and she emailed me information about your "milagro" (miracle in spanish). Mert's son Everett and my daughter Raena were classmates and dear friends in Casa Grande Arizona. Mert and I were lucky enough to forge a friendship from our children's. Mert emailed me regarding your son's birth, because I too had a milagro, Hannah Grace. I went into labor at 22 weeks. It was discovered that I was dialated to 4 and unfortunately my water was broken. It was devastating, as I'm sure you know. The doctor said we would lose the baby in 12 hours, they would not let me die due to infection, and hence would start inducing the inevitable. He then offered, he could begin the unthinkable, or wait and see what "Mother Nature had in store". Let it be noted that he was wearing a Bendictine College teesshirt and a large crucifix. I of course said yes, lets wait...well I spent the next 3 days upside in bed (vantrellenburg (?)) and praying for my baby and me. I never spiked a temp like they expected, and decided after those 3 days, to go ahead and move me to the long-term maternity ward. I stayed there for one month. On my back, doing everything laying down, on meds and quiet, jubilant that I was pregnant another day. At 26 weeks and 3 days, I finally went into labor again..it was then the real threshold for viability, and the number I was praying for. She was born on July 1, not due till Ocotober 18. She weighed 1lb, 12 oz. It was a long stay in the NiCU, with ocillaters, infections, transfusions, fear of head bleeds, kangaroo holds, nursing so she could get her 1 drop an hour, and all the rest. She was sent home September 10, weighing 4 lbs, and a week later at her checkup, so happy she was to be home, she weighed 5lb 7oz. Hannah is now 10 years old and perfection. She is healthy, strong, big or bigger than her peers, and a spirit and soul that touch everyone who first meet her. She dances, plays the trombone, and writes amazing poetry and stories. She says amazing things sometimes out of the blue, like explaining heaven, like she's been there already. She is my angel and reminds me everyday of the promises I prayed on and the things I begged for. God is truly merciful. I hope this brings you a little window of how miracles do happen, and at those long hours in the NICU, and the cries on the way home, he will be home with you soon. If there is anything that my husband Bill or I can do, please do not hesitate to call or write. God Bless you all, Christina Holt email - almasoul67@aol.com address - 1180 Avenida Grande, Casa Grande, AZ 85222 cell phone - 520-840-1519.

Christina Holt
Sun Nov 19 11:23:05 2006

I am so proud to know the three of you, your faith and strength is evident. Keep it up, you are in my prayers and thoughts, I can't wait to hold Javid and let him know what great parents he has been blessed with.

Lila Brunson
Thu Nov 16 12:42:09 2006

Thank you for writing about Javid's journey and yours also. I pray for strength for both of you. There are many people who are thinking and praying for you.

Glenda Moyer
Thu Nov 16 6:45:42 2006

Tony and Ana Lisa, Somehow I didn't notice the new guestbook link until tonight. We're so glad the water sounds and chants worked. :) We love having the website to check in on though I am getting antsy to see you and Javid again. A good number of folks in northern Indiana are thinking of Javid and you often. Take care, Bev

Your sis Bev
Wed Nov 15 22:51:56 2006

Dear Ana Lisa, Tony and baby Javid, I carry you in my heart and think of you every day! Con amor, bia

Bia
Wed Nov 15 16:02:28 2006

I don't think we've spoken since High School, but my parents made us aware of your situation with Javid, who, by the way, is adorable and looks remarkably good. Our hearts go out to you. We are 7 months into a similar journey with our son Trent who was a 26 weeker born in April. I could go on for pages with all sorts of advice, but will refrain and offer only this: always be prepared for the next "bump in the road" (there will be many more) but experience the joy of the positives fully in the moment, keep your faith, and no matter what, find time for yourselves and never stop valuing your relationship as a couple...it's a long long road; you need family, friends, faith, but most imporatnly, each other to persevere. If you ever need information, support or just someone to vent to who has been where you are, please don't hesitate to contact us. My email is dpark669@aol.com. Best Wishes and Stay Strong, The Parkers

Dave, Maureen, Cole & Trent Parker
Wed Nov 15 10:10:25 2006

Ana Lisa-Tony; The news of Javid's birth was received at church via the Mitchell-Bennett family. Although Bittersweet at the onset--the clinical progress is beautiful, encouraging, and sounds wonderfully hopeful overall. As I too, know the gravity of pre-eclampsia from experience, I am grateful for your ever present and vibrant recovery, AnaLisa!! Keep on pumping and stimulating the human mammary system....Breast milk will serve to protect Javid's Gut from NEC, antibodies for immune system development, and more....inlcuding 11 IQ points over the none breast milk babies!! We prayer for all of you--Javid and his overall health and development; a healthy and normotenisve mommy (BP stable--no meds); serenity and peace for both parents as you continue the journey of Javid gestating extrauterine life! Happy 30th week of gestation (corrected) mark to Javid!! Sunshine and Vitamin D from Brownsville, TX

Joanna Schnupp Imperial
Tue Nov 14 20:53:34 2006

Hello Family. I work at the Maria de los Santos Health Center and we send you well wishes and many prayers. Thank you for sharing your family with us! Brenda

Brenda Cooke
Tue Nov 14 16:15:10 2006

Here we are again getting into bed and doing our little check on Javid routine. Finally we're getting around to signing this thing. Love the new milk picture. btw, what's up with the Paula Abdul? random! Love you three, adme

Amy, Dave, Maggie and Edwin
Mon Nov 13 23:39:46 2006

Javid is starting to look more and more like his daddy every day. Thanks for keeping this site current. i love getting to watch him grow.

Carrie
Mon Nov 13 21:47:46 2006

Hey guys, Margaret forwarded the web page to me and its so wonderful. Javid is a miracle and I will keep sending my good thoughts your way. Much love, Carolyn

Carolyn Silver
Sun Nov 12 20:18:46 2006

I checked in to see how little Javid (and you all) are doing and the boys were watching over my shoulder at the computer. Now they are constantly asking about "the little baby who came super early" and always include him in their prayers at night. Nick and I too think of you often and we are so glad Javid has you two as parents...your openess and love and strength are inspiring. Now that I know about the website we'll check in more often. Actually, Caelan already added it to our "favorites" without me asking (yes, he's growing up!). May you have a good night sleep as often as possible and take care of each other during this challenging time! We love you. Lisa

Lisa Mitchell-Bennett
Sat Nov 11 19:31:37 2006

We are visiting your small family today and are getting so attached to that little Javid already. He's showing signs of what he's becoming. We will probably be up here as frequently as time will allow, now that we have an apartment to hang out in. Love you guys and Javid-the-Great! Dad/Paul

Dawdy Paul Yoder
Fri Nov 10 20:07:58 2006

HI Ana Lisa and Tony. Thnaks for keeping us updated. We are ahppy to hear that things are going well. HAPPY 1 MONTH TO JAVID! We miis you AL! I have you all in my thoughts. I ma sending you positive vibes from here could you feel them ()())()_()___()__))___!!!!!! I hope to be able to visit Javid sometime! A big hug, Suzette

Suzette
Fri Nov 10 13:43:29 2006

Loved those photos with Javid's eyes wide open - he was mostly sleepy while Dad was in there today. On Saturday afternoon I was alone there in the alcove so I sang a made-up lullaby on Saturday - guess it was pretty bad since he squirmed a bit and poked his fist out. Then his eyes opened a slit and I decided it was a wink for Nana. This little one is growing on me - I think of him a lot - think of you a lot, too, Tony and Ana Lisa. Waiting is not a lot of fun!

HelenMomNana Lapp
Thu Nov 9 20:54:23 2006

We check on you every day here on this awesome website. Javid, you and your wondeful parents are in our thoughts and prayers every single day. You are a fighter! Now let's get big and strong. We love you!

Matt, Chan, Addyson, and Aeron
Wed Nov 8 21:50:30 2006

Thanks to Michele for setting up the guestbook!

Tony
Wed Nov 8 17:35:07 2006

Happy 1 Month Birthday to little Javid! Good to hear that you are doing so well. Love from the Yoders.

Michele Yoder
Wed Nov 8 11:16:32 2006

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